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Thanks for not leaving it alone - you've raised important points, though I'd suggest to everyone that digging at this thread much further will unlikely achieve either insight or harmony.

Betteridge's law of headlines = "Any headline that ends in a question mark can be answered by the word no." https://en.wikipedia.org/wiki/Betteridge's_law_of_headlines

Copied across from https://www.s4me.info/threads/evidence-that-long-covid-is-different-from-me-cfs.23834/page-2#post-401386 DC and HHS pages on Long COVID make it very clear that at least from the US Gov perspective LC is a clinical concept wholly separate from ME/CFS CDC.gov Post-COVID...

CDC and HHS pages on Long COVID make it very clear that at least from the US Gov perspective LC is a clinical concept wholly separate from ME/CFS CDC.gov Post-COVID Conditions: Information for Healthcare Providers...

Yeah - but good quality housing medical and social care aren't on offer so something that helps you mentally survive another year without going under might be welcome. With this sort of humour ? Four decades ago we nearly went to live around there - but the flat got firebombed by someone...

It strikes me as horrible and I hate the whole way it was Press Released but - this is happening in an economically and socially challenged inner city area where there are widespread health deficits. It's part of a package of giving people ways of doing something new and outside their...

I think "ME/CFS-type symptoms" is actually the appropriate form in the context of general articles about Long COVID. Long COVID is an inexact short hand for a plethora of symptoms which include some that are of known pathophysiology, affecting a range of organs, some in ways that are...

This is the actual service: https://www.bartonhillsettlement.org.uk/health-and-wellbeing/social-prescribing/

Ramsay of course is not the only historic authority - it was Acheson who wrote the first systematic review to use the term ME albeit as Benign Myalgic Encephalomyelitis: Acheson, E. D. (1959). The clinical syndrome variously called benign myalgic encephalomyelitis, Iceland disease and epidemic...

It's not the surprising that non medics/researchers mix up names but for someone like Naviaux to get in on the act is IMO unacceptable. After all the decades of trying to get meaningful diagnostic criteria widely accepted, to then have ME/CFS bundled into an even bigger waste basket of diverse...

"People who suffer from Long COVID Syndrome and ME/CFS have nearly identical physical symptoms" this is becoming a pervasive meme that seems based on nothing more than pronouncements from authority. Post Covid symptoms include a whole range of things that have never been reasonably linked to...

Quotes Hickie et al 2006 to support the claim that: "Fatigue is a particularly prominent feature of acute EBV infection and can last for months and even develop into Chronic Fatigue Syndrome" - Hickie et al looked at EBV, Q fever and Ross River fever, in 253 subjects 28 of whom were classed as...

Truly ground breaking (or perhaps not) https://en.wikipedia.org/wiki/Suramin "Suramin is a medication used to treat African sleeping sickness and river blindness. It is the treatment of choice for sleeping sickness without central nervous system involvement. It is given by injection into a...

Theory testing - I couldn't guess which particular suite of psych theories the individual is signed up to but the research has nothing to do with 'persons', it's just about matching replies to reported symptoms and then showing how patients can be catalogued and how that supports or doesn't...

I guess we'll know more if we get sight of the Agreement. From the September 1st media release and the NICE strategy statement: https://www.nice.org.uk/about/who-we-are/corporate-publications/the-nice-strategy-2021-to-2026 it's clear NICE considers that there will be some synergy involved...

Indeed - which comes close to 'diagnosis by Tweet'. Resia Pretorius is part of a Health start up https://afrikanheroes.com/2021/10/15/south-african-healthtech-startup-biocode-raises-473k/ "A collaboration between SU’s Physiological Sciences Department and the Department of Electrical and...

And today's word is: Alexithymia - "a personality trait characterized by the subclinical inability to identify and describe emotions experienced by oneself". Wikipedia Alexithymia comes up frequently when combining "difficulties in processing emotions ...... contribute to the severity of...

This a section is from an online handbook: https://www.racgp.org.au/clinical-resources/clinical-guidelines/handi "The Handbook of Non-Drug interventions (HANDI) is making effective non-drug treatments more visible and easier to use. HANDI aims to make ‘prescribing’ a non-drug therapy almost as...

Developing an open science ‘mindset’ Martin S. Hagger ABSTRACT Identification of widespread biases present in reported research findings in many scientific disciplines, including psychology, such as failures to replicate and the likely extensive application of questionable research practices...

Unless there is some exclusion such as "commercial interest" then the dealings between a public body and a non public partner are subject to FOIA via the public body, this would apply to all areas that are covered by any formal agreement between the two entities. Of course contacts outside the...