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    Making a 'Charter for Ethical ME/CFS Research'

    except for the retrospectives done by those who ran CFS clinics it seems
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    Making a 'Charter for Ethical ME/CFS Research'

    and of course power corrupts. wherever you think it is placed, it either changes those who get it, or those who chase it play the game etc. I do think, however, that 'tooling up' and 'requiring responsibility' from those who are placed in any position where they are representative, whilst...
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    Making a 'Charter for Ethical ME/CFS Research'

    Spot on. And there should be a guarantee that null hypotheses or refutation of theories are as straightforwardly reported as one would expect. Otherwise it is effectively not only a waste of funding for that, but a step towards more wasted funding on the basis of things never being refuted or...
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    Making a 'Charter for Ethical ME/CFS Research'

    In my mind this sort of thing probably is a bit like that phrase people say about good law: where the best law means that most don't notice it I think that those who engage in good conduct might read the top-level asks on this and be a bit confused thinking 'isn't this obvious and what we...
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    Making a 'Charter for Ethical ME/CFS Research'

    But I like the idea that a charter could help this and spell out some of the things that have occured and do tend to occur that need to be avoided. I'm afraid that for various reasons relying just on that as a tick-box without guidance of what is expected will be picked up is insufficient. ie...
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    Making a 'Charter for Ethical ME/CFS Research'

    I just don't know much/enough layperson's stuff about this, so would be interested in anything you can point me to, whether it is articles or your own summary @poetinsf I think it is interesting to learn lessons from all sides of history and of course I'm intrigued to know more generally :)
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    Making a 'Charter for Ethical ME/CFS Research'

    I like this. I think it is important. And underlining how vulnerable a population we are for various reasons - because I think we've been targeted by this activity because of our inability of many to speak, nevermind speak in a convincing (because we come across as sick) and unending against...
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    UK: The Clinical Post COVID Society

    This paper has both Heightman and Livingstone as authors talking about that UCL service: Post-COVID-19 assessment in a specialist clinical service: a 12-month, single-centre, prospective study in 1325 individuals | BMJ Open Respiratory Research and here : Speaker-Bios-FINAL.pdf (potsuk.org) as...
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