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  1. Barry

    Problems with accessiblity for people who use wheelchairs

    Yes. There are examples at one end where interests are clearly in conflict, and at the other where it would be ludicrous to suggest an interest was in conflict. There is also a whole grey area in between, and I confess I'm never quite sure where the dividing line is.
  2. Barry

    Problems with accessiblity for people who use wheelchairs

    This is akin to excluding women from voting on an equal pay for women vote!
  3. Barry

    Lightning Process - discussion thread

    Looks like this bus must have done the Lightning Process ...
  4. Barry

    RoB 2: a revised tool for assessing risk of bias in randomised trials (2019) Sterne et al.

    Just to highlight the inconsistency here: Clearly a lack of joined up thinking - or maybe just thinking - here.
  5. Barry

    Pathomechanisms and possible interventions in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS),2021,Fluge,Mella,Tronstad

    Do you mean no one attempted to replicate the results? Or it was attempted but failed to?
  6. Barry

    Lightning Process - discussion thread

    I expect others will know of this, but first time I've spotted it: LP DOES NOT WORK FOR ME https://www.sayer.abel.co.uk/MESNORFOLK/LP.html In contrast to Voices of Recovery.
  7. Barry

    Voices of Recovery website (Lightning Process promotion)

    The inbuilt bias is pretty strong isn't it. Voices of Recovery, not Voices of LP Participants. And the joining criteria is pretty selective ... But what else would you expect ...
  8. Barry

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    That is good, because that should mean the whole thing is open to public scrutiny.
  9. Barry

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Do we know if there is a way to clarify these things in advance?
  10. Barry

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    So is it still definitely the case that no further comments on the draft have, nor will be, accepted after the deadline that was set, as per: And that all NICE is doing now it considering all the evidence and comments that arrived up to that date and no later? Or is there some back door...
  11. Barry

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I'm confused. I thought the cut-off date for further stakeholder input to the guideline process, and commenting on the draft, had long passed. I though all that remained was for NICE to consider the feedback on the latest draft that had been received up to that deadline, and no other. I thought...
  12. Barry

    'Lab' testing - could dogs smell ME/CFS?

    merged thread https://meassociation.org.uk/2021/05/mail-online-my-canine-carer-can-even-tell-when-im-about-to-faint/
  13. Barry

    [Blog] Beyond the NICE guideline: MEComms© and the case for a public inquiry

    I would think any public enquiry would be some time into the future. There would be a lot of groundwork to be laid, not so much with that as an aim, but more as secondary benefit of improving public understanding.
  14. Barry

    “Positive” Results Increase Down the Hierarchy of the Sciences, 2010, Fanelli

    I think most people will guess that the psych collective will report their results most positively. When framed this way, it just seems to fit the mould. The less definitive the science, the less definitive the results need to be to claim success. It's as if it is a science attracting a...
  15. Barry

    Public ‘Social’ Mitochondria, Whispering Between Cells, Influence Health - Quanta Magazine

    Fascinating that this dynamic orderly collaboration, cohesion, between trillions of component parts, essentially characterises what we call "life". Components forming subsystems within subsystems, nested to goodness knows what depth. And it all breaks down once the organism dies, its atoms...
  16. Barry

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    I think that is exactly it. There seems to be no real direction to this article, unless you consider it an attempt to misdirect. To make biomedically-oriented doctors look like the bad guys, and for the "enlightened" ones to swivel to a BPS approach.
  17. Barry

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Yep. A bit like double-glazing. We sell it. We want you to buy it. What do you mean it's not right for you! You clearly do not know what is right for you - our windows are right for everyone.
  18. Barry

    CBT repackaged or a novel treatment? The Lightning Process compared with UK specialist medical care for paediatric [CFS], 2021, Anderson, Parker et al

    They are striving to get the comments about LP removed from draft guideline when it becomes formalised. That's my bet.
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