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The difference in tone is significant, both in magnitude and implication. Much more conciliatory this time, much less arrogant/belligerent. Interesting to ponder why? I think it shows folk know the writing is on the wall. Indeed it has, especially the way long-time promoters of cr*p science may...

Einstein's quote comes to mind "Insanity is doing the same thing over and over and expecting different results.” I think they maybe need some help.

I only know of Nick Ross as a TV journalist from a while back. Various news programmes, and things like Crimewatch. Always came across as someone interested in fighting for the rights of those unable to do it for themselves. No idea how he fits into all of this though.

From that link, what is the difference between the "raw dataset", which is not available, and the "analysis-ready dataset", which is available? Is the latter simply an anonymized version of the first? Or can the latter have been post-processed by the authors so it is only ready for the sort of...

The PACE authors played incredibly hard to get, as we know, for release of data from the previous FOI request, and it was very clear why they did that, given how analysis of that data exposed so much about their amateurish science. So it doesn't need a lot of insight to understand why they are...

Well you certainly haven't lost your mind, which these sort of people seem to have done.

So it was cutting edge "bullocks" then ... :rolleyes:

This is like topsy turvy land! Do people really buy into this drivel?

So the title of this paper includes ... [my bold] Yet the primary outcome measure, the Work and Social Adjustment Scale (WSAS), is clearly targeted at assessing people's mental state. Every single question begins with "Because of the way I feel, ...", meaning that the trial's primary outcome...

I think politics is OK provided it specifically relates to ME/CFS.

Production line science.

The lack of response to a very cogent letter such as this would, in its way, be a tacit response in itself. Should any enquiries ever be instigated in the future, a very deliberate lack of response might be interpreted as showing a clear inability to sensibly answer the questions without risk of...

It would seem it needs a reply to cfs@nice.org.uk stating the above. If they have clearly published an email address that they deny publishing, and have not been monitoring that address - how much pertinent, maybe crucial, information has been lost to the guideline process! This is essential to...

Excellent.

Yes, I think that is the point. If a councillor is conflicted in doing that for whatever reason, then then there is an issue that at least should be declared. But to presume blindly and naively that an interest will conflict them in performing their duty is where it goes wrong.

I suspect that as Dr. David Strain is one of the researchers heading this up, there is hopefully a good chance that ME/CFS will be factored in ... https://www.actionforme.org.uk/news/dr-david-strain-on-m.e.-and-long-term-impact-of-long-covid/

Yes, it all gets a bit confusing. What if none of the councillors were disabled? What if they all were? The thing about conflicts of interest is not so much the interests themselves, but whether they conflict with people's ability to carry out their professional duties objectively, free of bias...

Even if the reports are genuine, they are highly filtered and thereby highly biased, because only successes ever get reported on Voices of Recovery. To me the key issue is not about whether LP ever succeeds (statistically there will be some successes, given the ramshackle diagnoses that...

This has been noted before in S4ME in a different context, but worth noting again here. NICE very specifically make clear in their CoI guidance: https://www.nice.org.uk/Media/Default/Get-involved/Fellows and scholars unsecure/Conflicts-of-interest-policy.pdf If it is good enough for NICE, it...

Significantly worse than useless in a way, because they give the illusion of well informed science to those not in a position to know any different.