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  1. Dolphin

    "Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia... van Campen et al, 2020

    Although they were able to find a relationship between orthostatic intolerance symptoms and a reduction in cerebral blood flow, there was still a lot of variation:
  2. Dolphin

    "Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia... van Campen et al, 2020

    The orthostatic intolerance questionnaire questions were listed in the paper for anyone interested
  3. Dolphin

    "Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia... van Campen et al, 2020

    Would anyone have an idea whether there would be many similar testing facilities available in clinical (as opposed to research) environments in other countries? It could be useful for helping to show disability as mentioned in the paper and also above.
  4. Dolphin

    "Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia... van Campen et al, 2020

    It’s interesting how a widely (it appears) alternative method [transcranial Doppler] may have problems associated with it:
  5. Dolphin

    "Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia... van Campen et al, 2020

    I’ve never had a SPECT scan but I presume they are generally done supine. The supine cerebral blood scores were quite similar between healthy controls and the three ME/CFS groups. (See Table 2). So in some ways it looks like the results don’t match.
  6. Dolphin

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    If Lucinda Bateman has changed her position, that would be great. She wrote stuff which frustrated me in the 2000s (another one attached), but I have seen less frustrating stuff by her in recent years. I wouldn't read too much into a short letter where she was not the lead author.
  7. Dolphin

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    Well I don't like the way many of these experts have discussed exercise in the past. See for example this article:
  8. Dolphin

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    Some US experts who have recommended exercise: Susan Levine; Lucinda Bateman; Nancy Klimas; Peter Rowe; Ben Natelson; Anthony Komaroff (I have only heard this from his clinical practice rather than see it in a piece he wrote). Edited to add: Charles Lapp
  9. Dolphin

    4th International Conference on Functional Neurological Disorders, June 2022, Boston University [was originally scheduled for 2020]

    For what it is worth: It takes place right after IACFS/ME 13th International Scientific Conference: June 10 - 13, 2020 in Stony Brook, NY https://www.iacfsme.org/2020-conference
  10. Dolphin

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    Lots of the sympathetic clinicians the CDC uses in its study recommend some form of exercise, so in some ways it's not that surprising.
  11. Dolphin

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    Given eminence seems to be important in the medical field, the CDC website and some of its statements have proved useful for us in our (another) country.
  12. Dolphin

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    In case you don't know, information on past meetings, including speakers, transcripts and audio recordings can be found here: https://www.cdc.gov/me-cfs/programs/meetings.html
  13. Dolphin

    Leonard Jason research finds that many young people have ME/CFS (Simon M blog)

    Remission should be used in situations like this, given they might become ill again. Taking these figures at face value, they show that recovery is quite common in children, though it depends how it was defined.
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