Although they were able to find a relationship between orthostatic intolerance symptoms and a reduction in cerebral blood flow, there was still a lot of variation:
Would anyone have an idea whether there would be many similar testing facilities available in clinical (as opposed to research) environments in other countries?
It could be useful for helping to show disability as mentioned in the paper and also above.
I’ve never had a SPECT scan but I presume they are generally done supine. The supine cerebral blood scores were quite similar between healthy controls and the three ME/CFS groups. (See Table 2). So in some ways it looks like the results don’t match.
If Lucinda Bateman has changed her position, that would be great. She wrote stuff which frustrated me in the 2000s (another one attached), but I have seen less frustrating stuff by her in recent years. I wouldn't read too much into a short letter where she was not the lead author.
Some US experts who have recommended exercise:
Susan Levine;
Lucinda Bateman;
Nancy Klimas;
Peter Rowe;
Ben Natelson;
Anthony Komaroff (I have only heard this from his clinical practice rather than see it in a piece he wrote).
Edited to add: Charles Lapp
For what it is worth:
It takes place right after IACFS/ME 13th International Scientific Conference: June 10 - 13, 2020 in Stony Brook, NY https://www.iacfsme.org/2020-conference
Given eminence seems to be important in the medical field, the CDC website and some of its statements have proved useful for us in our (another) country.
In case you don't know, information on past meetings, including speakers, transcripts and audio recordings can be found here:
https://www.cdc.gov/me-cfs/programs/meetings.html
Remission should be used in situations like this, given they might become ill again.
Taking these figures at face value, they show that recovery is quite common in children, though it depends how it was defined.
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.