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Great - I've added that to the title and first post.

Very sorry to hear that, Dechi.

Apparently it will start on 'this page' (which I think means that FB page) when the livestream begins but not until then.

@JaimeS, any idea how/where to watch this online?

Argh! Me neither! Anybody got a link?

Bump! Any minute now.

Bump! Starts in 40 minutes.

Is this in Nature, as in the big science journal? Hard to tell from the website.

30-minute interview originally broadcast live, with questions from the online audience, possibly (I haven't watched it yet):

Welcome to the forum, @Nathalie Wright! :thumbup: I hope that people come forward.

Good point - might be good even for their younger relatives to get in touch.

I think this needs a new thread from post #17, with the title of the paper as the thread title. I'm reporting my own post, to ask the mods to split the thread.

https://twitter.com/_NathalieWright/status/928658062684106754 She says stories can be anonymised where necessary. Nathalie Wright has ME herself: http://www.meassociation.org.uk/2015/11/nathalie-wright-talks-about-the-misery-of-living-with-me-huddersfield-examiner-26-november-2015/

According to the ME Association on FB:

I think it's an excellent idea on their part - if I were running a charity, I'd be doing this - and it's in patients' interests to be updated. I would like to see other charities doing this, though, or even us, if any of us are capable. Not all ME/CFS researchers would be willing to engage with...

Here's his ME-pedia entry: http://me-pedia.org/wiki/James_Baraniuk ...which includes a list of his talks and interviews: 2016, 11th Invest in ME International ME Conference 2016 Exercise testing and Orthostatic Tachycardia 2014, 9th Invest in ME International ME Conference 2014 (no speech...

He's not someone I remember reading much about. Here he is: http://faculty.georgetown.edu/baraniuj/Site/Welcome.html

https://twitter.com/natashalipman/status/928558664100794368

Interesting right at the end at about 55:00 - Ben asks Ron what might be happening up until Xmas and Ron says they're considering doing very small clinical trials and have some candidate drugs in mind for trials of 5-10 patients (if I've understood that) - they'd be looking for a big effect that...

I'm still listening. I agree that for an audience of PWME, a shorter, more focused interview would be a good way to go but I appreciate both Ben and Ron doing this. I'd love to see the UK Biobank people interviewed, or Karl Morten (the Oxford guy that the MEA are supporting with last year's...