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  1. Dolphin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Interesting the way she says she has more understanding of “these chronic conditions” (just after ME and CFS mentioned). Makes me wonder whether she might have been at least somewhat dismissive of them in her head which might help explain why she has seemed fairly desperate to keep them separate.
  2. Dolphin

    Studying College Students for the Development of Infectious Mononucleosis and ME/CFS, Feder and Wormser, 2021

    Presumably an editorial on the recent Jason study on the topic.
  3. Dolphin

    The draft updated NICE guidance for ME/CFS highlights the unreliability [...], Vink& Vink-Niese, JoHP 2021

    What was found in Jason et al? The BMJ Dubbo paper said 12% at 6 months and 9% at 12 months. I remember Cort Johnson saying something like he heard (possibly from correspondence with Andrew Lloyd?) the figure was really low at 2 years (I think 1-2%) in Dubbo but I never saw anything about it...
  4. Dolphin

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It will be interesting to see if objective evidence shows up of his recovery. As was highlighted again over the weekend with a Swedish or Norwegian newspaper article, you are trained to lie after LP. I know less about the other brain training courses but the same doubt may apply to people who...
  5. Dolphin

    Lightning Process - discussion thread

    Also note that parents often accompany children to the Lightning Process training so she (the mother) may have been LPed.
  6. Dolphin

    Recognising and explaining functional neurological disorder, 2020, Stone et al

    I haven't followed this thread, but people may or may not be interested in the following rapid response: https://www.bmj.com/content/371/bmj.m3745/rr-1
  7. Dolphin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I saw this posted elsewhere but haven’t watched myself except for a couple of minutes. Prof Danny Altmann of Imperial College London YouTube / Long Covid Date: January 16, 2021 WebTV: Item: PCS relapse after vaccination?
  8. Dolphin

    Homebound versus Bedridden Status among Those with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Jason et al

    Is that different in many countries? And, in particular, do many people with ME/CFS who are not expected to die anytime soon get hospice care in any countries? It's not something I had ever considered looking for as an advocate.
  9. Dolphin

    "Sitting up straight does not prevent or treat back pain, study finds"

    https://www.irishtimes.com/life-and-style/health-family/sitting-up-straight-does-not-prevent-or-treat-back-pain-study-finds-1.4462419 I don't know of course how definitive this study really is/these comments really are.
  10. Dolphin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I was thinking about the fact that in some countries some workers e.g. some health workers are out on full pay due to Covid. Now that the pandemic is still raging, there is not much focus on that, but such huge expenses and little incentive for some to go back to work could lead to some...
  11. Dolphin

    The biology of coronavirus COVID-19 - including research and treatments

    The ME Association in the UK has asked about experiences with vaccines (or at least the flu vaccine) in the past on their polls on their website:
  12. Dolphin

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Personally, my impression is that Francis Collins has shown more interest in ME/CFS than his predecessors and is likely to be better for us on average than a random person who might get the job. I think NIH funding is heavily related to how many applications they get. Not many applications have...
  13. Dolphin

    Trisha Greenhalgh on ME/CFS and Long Covid

    Regarding Greenhalgh, I remember something happened before where someone was asked a question and the ME/CFS community didn’t like the answer and considered it bad PR. I don’t know what happened here but sometimes it’s best not to ask questions about ME/CFS if it might lead to annoying...
  14. Dolphin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    official press release: https://www.cpr.cuhk.edu.hk/en/press_detail.php I don't think it's available yet: https://gut.bmj.com/content/early/recent
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