Interesting the way she says she has more understanding of “these chronic conditions” (just after ME and CFS mentioned). Makes me wonder whether she might have been at least somewhat dismissive of them in her head which might help explain why she has seemed fairly desperate to keep them separate.
What was found in Jason et al?
The BMJ Dubbo paper said 12% at 6 months and 9% at 12 months. I remember Cort Johnson saying something like he heard (possibly from correspondence with Andrew Lloyd?) the figure was really low at 2 years (I think 1-2%) in Dubbo but I never saw anything about it...
It will be interesting to see if objective evidence shows up of his recovery. As was highlighted again over the weekend with a Swedish or Norwegian newspaper article, you are trained to lie after LP. I know less about the other brain training courses but the same doubt may apply to people who...
I haven't followed this thread, but people may or may not be interested in the following rapid response:
https://www.bmj.com/content/371/bmj.m3745/rr-1
I saw this posted elsewhere but haven’t watched myself except for a couple of minutes.
Prof Danny Altmann of Imperial College London
YouTube / Long Covid
Date: January 16, 2021
WebTV:
Item: PCS relapse after vaccination?
Is that different in many countries?
And, in particular, do many people with ME/CFS who are not expected to die anytime soon get hospice care in any countries? It's not something I had ever considered looking for as an advocate.
https://www.irishtimes.com/life-and-style/health-family/sitting-up-straight-does-not-prevent-or-treat-back-pain-study-finds-1.4462419
I don't know of course how definitive this study really is/these comments really are.
I was thinking about the fact that in some countries some workers e.g. some health workers are out on full pay due to Covid. Now that the pandemic is still raging, there is not much focus on that, but such huge expenses and little incentive for some to go back to work could lead to some...
Personally, my impression is that Francis Collins has shown more interest in ME/CFS than his predecessors and is likely to be better for us on average than a random person who might get the job.
I think NIH funding is heavily related to how many applications they get. Not many applications have...
Regarding Greenhalgh, I remember something happened before where someone was asked a question and the ME/CFS community didn’t like the answer and considered it bad PR. I don’t know what happened here but sometimes it’s best not to ask questions about ME/CFS if it might lead to annoying...
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