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I think they are coerced into it and they can’t most of them ‘be honest and not polite’ and that’s the awfulness of the ‘scam’ even those not literally threatened have been trained to ‘be polite and gizza score that will put our gravy train on the road’ or else. I mean ‘don’t be like Dave ...

This doesn’t sound as clear as the me/cfs survey regarding ‘not thinking they can treat the condition’ and being about sorting out misinformation should people need to access psych support for other reasons. it mentions rehab etc clarification and detail in this is important it’s worrying...

I think potassium is more likely to be picked up - is it either in the standard battery or more likely to be thought of than sodium by HCPs?

Yes it’s such an important area that I guess could easily be better on knowledge and GPs then educated more on and would/could transform lives because effects can be so debilitating- but are just poo poohed I know I’ve had this for over a decade but wouldn’t even know what type to describe -...

how do people get so bad as this? It’s an important question to understand how she got here if you have any info on how this ‘position’ happened snd developed and someone ends up running the show on this? I compare with Caroline kingdon and her knowledge and thoughts on the illness and it is...

There is also in the UK the graduate-entry medical school option. Which requires an undergraduate degree (3yrs after school, doesn't have to be science - depends I assume on demand, school itself and so on) and is 4yrs. PLus Oxbridge, and I think Scotland still (although I'm not sure whether...

If it turns out it is a repeatable finding... I've been trying to look up particularly the second of the two and ended up coming across the following, I've no idea whether I'm going a bit off-piste :) Force Generation - an overview | ScienceDirect Topics scroll to the bottom of this page -...

it is interesting because that reactive is about absorbing the prior movement then initiating the next. I can almost see the overlap to the 2 day CPET vs the one day one. On the basis of it being about recovery for repetition - in the athletic sense rather than the illness sense. But I guess...

OK that's interesting because I assume from the UK that the focus was very much on the 'covid' and trying things that 'saved lives' , maybe some useful stuff from the clinics that included people who had heart, lung etc siphoned off for research and treatment in the 'long covid' larger category...

Of course I'm just blown away by the fact that it seems the same issue that means real treatments aren't being invested in - too much risk whilst we don't know the mechanism, which I assume is partly due to harm potential? and maybe some due to them not being able to predict whether it will be...

Thanks for posting. This seems a good development given she was involved in the parliamentary debates on ME/CFS too wasn't she? I've read the article and get a sense these are relatively important things but if anyone has more knowledge of the actual impact these things can make I'd be...

Can you pass on my thanks to Karen. I've one of those weeks, including today, so it's a short reply. But a quick read through am highly appreciative of her reply

Nudge

I don’t think it should be seen as an unpopular view. I suspect that most of those with experience are worried this is naive re some of these names as we’ve seen what has happened before, this isn’t the first ‘gizza nother chance’ which those doing this means they should be aware it’s not a fool...

Agreed. I'm worried that I'm seeing people who would need to change their model on here and wondering whether they were potentially signing thinking they would offer some/all of these additional things - which would really not be a good idea. I guess the phrase is part of the problem. Enough of...

I like this sort of thing, only if to remind people that sometimes you do need to step back and realise a lot you think you know as sure is actually only assumed, in order to end up reconfirming it after walking through it all again. It's a healthy process to do every so often. this just would...

OK now I'm getting into theoretical land but a test that is somewhat diagnostic would be interesting because we could look at what other diseases are actually common comorbidities without that 'maybe the fatigue is caused by x so y doesn't exist' type issue. Which I think is also potentially...

Agreed. I think there is a massive line between having it as a defined discussion for other things vs allowing these things to sneak in using the terms treatment, which feels like those doing it there is a bit of an agenda behind it. Even the article says Quality of Life, and it isn't any kind...

There is one editor for this special issue it seems: Prof. Dr. Cleofas Rodriguez-Blanco Guest Editor Physiotherapy Department, Faculty of Nursing, Physiotherapy and Podiatry, University of Seville Interests: physical therapy specialty; rehabilitation; coronavirus infections I hope that this...

Moved from above post for length. This is in the title part: So whilst these things on their own perhaps can't be defined as harmful - because someone interested in it can research if they want etc - the fact it is in this 'special issue' is a major different kettle of fish altogether. We...