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Interesting not well enough to read until a good day but off top of head it sounds feasible (but then all the bps stuff aims to tick that box so I know it’s the rest that counts)

I’m sort of similar and perhaps agree with some of your points I don’t fully understand your last para though I think mainly because I’m not familiar with the history of the two things you are referring to - sarcoidosis and julia newtons idiopathic etc - but it seems it might be interesting

Pretty loaded wording isn't it. Just goes to show that by now, given all the lessons they must have given some of the more talented in other generations in poor questionnaire design, there must be some who are interested and skilled enough to do a better job This feels like the questionnaire...

Yeah and I slightly wonder whether there is confusion over 'having days where you manage to get lots of things done' being said (and that phrase being relative anyway) vs days where you try to do lots being the actual 'opposite' implicit/intended. It can be just as much work re-reading that...

I manage to lid the end of my big toe and not notice for about 15 seconds when walking outside the back door for a moment. I assume this was because I rarely was out there without shoes and inside the consequences weren't so dramatic, and just thought nothing unusual of the contact with the...

Yep when the cat accepts getting breakfast at 4pm because they feel so much empathy, even if I was too unwith it to notice, among plenty of other things they clearly spot then I'm sure there is something to be picked up.

Yep it was always awful blagger BS nonsense and not based on trying to help anyone at all. And yes I'm allowed to say that about people because if you aren't really listening and doing your job properly and not following up then it isn't help, so that person'd be the one with the problem if they...

I think that this one sounds like a very interesting approach. Given it does need to be comparing individuals 'to themselves' - and PEM is a funny old beast which as the blog says involves some sort of over-threshold, normally exertion which might be cumulative. And might be PEM-on-PEM where...

Oh they do. It just isn't all of them. But the most (historically) female-heavy of them all: eating disorders, who knows what mixed bag of actual issues that could be tackled with a matched approach are going on there, yet instead we get personality-targeted tropes. Perfectionist label being...

There is another point here I have just thought of. Due to the misleading 'recovery' assumption I think something that has been coming through from enough people writing about their experiences is that you don't go to the GP for a while (because they can't help or nothing has changed, or you...

In the sense of the potential that various theories require you to be unlucky enough to take a big enough hit of 'something', perhaps when your body was vulnerable or you weren't in a situation you could recover well then I guess there is the probability roll-over of more years = more chances to...

Then again - if someone can explain, does even a bad peer review 'legitimise' as 'been reviewed' vs 'not been reviewed' without very significant changes having to be made? which seems a terribly flawed system if so.

This

This

is that really where the cancer literature is now? where the big charities would all be OK with suggestions that - what all cancer, given nothing specific has been excluded here, has a component of exercise tied to outcome? Because that would be as flawed as you get!!? Oh what a surprise those...

it's pretty bad isn't it when it is a review - something doesn't have a high risk of bias for no reason ie you have to assume there is a likelihood that the bias is operating in the direction of the preferred agenda of the writer. Because sure as heck if something was wrecking the result they...

Thank you. The link I've got doesn't have an obvious list of section links, so I'm 'going fishing' for the appendix. Of course that means that in the process I've come across the following section: OK on the membership, Ian HIckie appears to be the only one of these authors who is a member...

Thanks for confirming, I was interested partly because back in 1999 the internet had obviously been up and running for a bit but things certainly were nowhere near as workable for people from 3 different continents to work together as we might now assume. I know that perhaps there might have...

They've taken on a big job to try and find ways to pick these pieces apart in order to show this. But if they manage or get near to starting to do bits of it then it looks like they are trying to square the circle on showing up/how the misinformation and so on operates and what it causes. It's...

It can be a bit of a heavy read. But there is a chance there is something in here. And the methodological points I've seen so far seem pretty useful in the context of ME/CFS given we all go through stages of just rising above things and 'hoping for the best' and so on. But also accepting that...