Not sure that muddling your arguments is blameless. It is quite hard to work out what he is arguing about professions. I presume that professionals are much more likely to phone a helpline simply because they are more likely to have got diagnosed. And 'study after study' does not seem to be...
Yes that is the point. Moreover, the acute phase that got labelled a myalgic encephalomyelitis probably has no more to do with ME as we now know it than glandular fever or Q fever. It is a bit like confusing Covid with Long Covid. Covid affects sexes equally and is much worse in the overweight...
This is an important document.
I have been thinking that this is perhaps the next big battle that focus needs to be turned on. I am hoping to make a bit of headway but want to keep things confidential at present. NICE made some sensible comments but more is needed. For GET and CBT the Royal...
I think it is a matter of recorded fact that a large number of nurses and less so doctors were hospitalised in the Royal Free case. In those days there were nurses homes and doctors residences and high doses of virus may have spread in the kitchens. And oI think in the 1950s the Royal Free...
So PWME find themselves in the position we hypothesised about on PR ten years ago. Do you keep some services running just so that there is something, or do you scrap the lot. There were differing views then and the dilemma remains.
As far as I know health professional over-representation only ever applied to the acute phase of the Royal Free epidemic. Over-representation in an epidemic with hospitalisation seems unsurprising. Lots of health workers got Covid.
'should not be offered exercise-based treatments, unless the person feels ready to progress. If so, exercise should be overseen by a specialist ME/CFS physiotherapist and include regular review, information about the potential risks, how to recognise and manage a flare-up, and very careful...
Should US PWME be careful what they wish for?
I have no idea what pioneering next generation means (except maybe that nobody else has any idea yet either) but might the diagnostics already be in the pipeline with fMRI scans picking up that special effort preference? And might the treatment...
Indeed, this is the sort of parroted empty drivel I got used to from 'pain specialists' thirty years ago. The most salient thing is the lack of any actual understanding of the 'evidence' being presented. A word salad of non sequiturs if you like.
And the chairman introduces them as from the...
I suspect this is yet another high profile piece of pseudoscience.
I am not aware of any brain diseases being due to accumulation of metabolic waste. Metabolic waste normally is cleared by venules, not lymphatics. It is hard to see which direction synchronised neuronal ion shifts could usefully...
Excellent. It would be hard to think of two damper squibs than the last couple of letters.
This is good from Garner:'a school of thought supported by scientists who believe the condition is a complex interplay between the biological and psychological.'
Yes, well, can we be done with believing...
The classification of mental illness in the US has always been significantly different from in the UK. Which presumably simply means that you can move these names around how you like.
Depression is a particularly unhelpful category I think. It simply means a negative state of some sort.
The...
It is intriguing that this NCCIH seems to be founded on the basis that people with non-existent disease particularly deserve treatments that haven't been shown to work.
Maybe they realised that for non-existent diseases treatments can't work, but since these people keep coming they need a good...
@dave30th
To be precise, Nanki-Poo was the Lord High Executioner and Pooh-Bah was the
Lord High Everything Else
Edit: The LHE was of course Ko-Ko, my mistake. Nanki-Poo was Yum-Yum's beau.
"This acknowledged the ‘patient’s voice’, which had been highlighting the harm done by these treatments for many years."
Except that it didn't. It just looked at the quality of evidence in the normal way.
"The guideline committee had strong representation from people with lived experience of...
"In this revised description, interoception includes the processes by which an organism senses, interprets, integrates, and regulates signals from within itself."
Well, that isn't interception, matey. Regulation involves output. ~-ception is input. So you are likely to get yourselves confused -...
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