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  1. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Unbelievable! Fitting name though, Reklame literally means advertising in Norwegian..
  2. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Japan Times Japanese doctors warn of long-lasting COVID-19 aftereffects among young people It is important for people who have recovered from COVID-19 to refrain from exercising for a while, Hirahata said, warning that just taking a walk can cause their condition to deteriorate. “In one...
  3. Kalliope

    Nat Commun - Early-life-trauma triggers interferon-β resistance and neurodegeneration in a MS model via down regulated β1-adrenergic signaling - Khaw

    A Norwegian news site about research has an article today about this study. Khaw and colleagues took some of the mice away from their mother for several days while they were young, and also gave them injections of saline. This is how they inflicted both mental and physical stress on the mice...
  4. Kalliope

    Nat Commun - Early-life-trauma triggers interferon-β resistance and neurodegeneration in a MS model via down regulated β1-adrenergic signaling - Khaw

    Nature Communications: Early-life-trauma triggers interferon-β resistance and neurodegeneration in a multiple sclerosis model via downregulated β1-adrenergic signaling - Yee Ming Khaw et al Abstract Environmental triggers have important functions in multiple sclerosis (MS) susceptibility...
  5. Kalliope

    Norway: Røysumtunet, a centre for severe ME patients

    That's great to hear @andypants !
  6. Kalliope

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    NIH: Director's Messages - New resources for large-scale ME/CFS research Active NINDS efforts are underway to seek a better understanding of ME/CFS in order to treat—and ultimately prevent—this disease. Across biomedical research, innovative tools and methods are being developed to help...
  7. Kalliope

    Norway: Røysumtunet, a centre for severe ME patients

    A reassuring comment about dr. Storla from someone who prefers to be anonymous: Storla is really the right man for a severe ME clinic. Very compassionate and focused on symptom relief. He’s got a background from different highly respected Hospitals/Clinics witch gives him influence and respect...
  8. Kalliope

    News from Australia

    Fantastic effort by the ME patients interviewed! Very informative and recognisable. The GP who participated on the other hand talked about MUS and mind-body connection, and thus kind of involuntarily underlined the patient's stories of how hard it is to be believed and get proper help.
  9. Kalliope

    Norway: Røysumtunet, a centre for severe ME patients

    The doctor they hired is Dag G. Storla. He is a specialist in internal medicine and infectious diseases. He has a private clinic for CFS/ME and borrelia. I attended a lecture by him several years ago. It was at a conference promoting ME treatment at a Norwegian clinic by the Dead Sea. The...
  10. Kalliope

    Norway: Røysumtunet, a centre for severe ME patients

    The Norwegian ME Association has uploaded a brochure from Røysumtunet about their care facility for severe ME patients which is soon ready to accept patients. It's a PDF, so not possible to google translate, but you can see more pictures of the place. It looks beautiful...
  11. Kalliope

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Press release from NIH from 27th Jan: Research tools for ME/CFS-related data and biospecimens now available Two new research tools developed by RTI International(link is external), the Data Management and Coordinating Center for the NIH-funded ME/CFS Collaborative Research Centers (CRCs)...
  12. Kalliope

    News from Scandinavia

    Very good. Glad to see a politician speaking about this! Unfortunately I read the comment which I assume is written by a health care worker. Here's how it begins: Are these clinics really needed? I am open to new science and the fact that we do not know everything at the moment.However, I think...
  13. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The podcast is also available on YouTube. It was a great episode about listening to and cooperate with patients when researching, how important it is to make sure you're not harming trial participants, how much there is to build from the ME community, how it is crucial with more investment in...
  14. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I don't know. But I recommend listening to the podcast episode linked above. Once he'd learned of problematic aspects with fatigue measures, about the PACE trial, PEM and results from patient-led research into Long Covid, he stopped his own research project. I'm sorry, but am too foggy headed...
  15. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Had a look at the researcher on Twitter and yesterday he tweeted the following:
  16. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I am listening to this podcast episode now. Not sure I'll be able to make a summary, but the Canadian researcher is taking about challenges in how to perform research into rehabilitation of Long Covid patients when there are so many unknown factors. At about 20 minutes in (where I'm at now) he...
  17. Kalliope

    Medical scientists and philosophers worldwide appeal to EBM to expand the notion of ‘evidence’, BMJ Evidence Based Medicine 2020

    Publication history Accepted September 21, 2018 First published November 14, 2018. Online issue publication January 23, 2020 Does anyone know if it has received any reactions?
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