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  1. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Thanks for sharing, @mango I wonder why they emphasised that "high-performing" women in particular are developing long Covid. The medical specialist, Judith Bruchfeld, hypothesised that the reason for the large portion of women in this patient group, might be a possible autoimmune mechanism...
  2. Kalliope

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    A clever friend found a Facebook post from November 25th 2020 of Garner in Grenada. When googling Dengue and Grenada some local newspaper articles from September 2020 comes up about a significant jump in Dengue cases. Post edited to remove link to the Facebook post as on second thought sharing...
  3. Kalliope

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    If I remember correct Henrik Vogt tweetet recovery stories to Garner. And yes, Larun is at the Norwegian Institute at Public Health.
  4. Kalliope

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    And I have a feeling who this Norwegian PhD candidate might be..
  5. Kalliope

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It fits the manuscript to the recovery stories at Recovery Norge. Similar wording, argumentation, with kicks towards ME patients fighting for biomedical research and by saying stories from recovered are more important to listen to. The planned study on LP in Norway has received a lot of...
  6. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Trial By Error by David Tuller: Game-Changing Articles in The Guardian and The New York Times Many hoped, as I did, that the long-covid phenomenon would bring much-needed attention to ME/CFS itself, as well as greater awareness of the pervasive neglect and dismissiveness to which these patients...
  7. Kalliope

    News from Scandinavia

    New guest blog from Jørn Tore Haugen, Master of Science in Engineering at the blog "Life with ME by Sissel". The title is: Energy failure in ME/CFS Sub headlines: Mitochondria What is PEM? What is a CPET? Overview studies Learn more The battle for truth In this blogpost, Jørn Tore Haugen has...
  8. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    A great commentary today in the newspaper Dagbladet (the same newspaper who has defended the LP trial in several articles and attacked those who criticise it). The commentary is written by an independent author called Camara Lundestad Joof who shares a weekly column with a few other...
  9. Kalliope

    News from Scandinavia

    I don't know. But I hope they're able to make a summary in English. They've published several very good and thorough reports based on surveys and I agree it would be great if more was available in English. Probably comes down to capacity.
  10. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Thanks, @Esther12 I'll edit that in to the post.
  11. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Interesting tweet from an MP (have no idea who he is beside the twitter bio) ETA: It's probably NOT from any MP, but a parody account
  12. Kalliope

    News from Scandinavia

    The Norwegian ME Association reports in their latest news summary that they have just published a new survey about disease course. The survey took place in 2019 and had 5 822 respondents. The survey had two main questions: what are typical disease courses and which factors have had a negative or...
  13. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    It's the same article I shared December 18th on post number #475 in this thread, but much better to have a properly translated article than a google translated one. The journalist is also the editor of this news site about research. She's talked and written about ME and research into ME several...
  14. Kalliope

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Wow! He nailed it!! If one good thing emerges from this pandemic, it could be more recognition and funding for people with ME/CFS. This must begin – and it’s amazing that in 2021, it still needs to be said – with doctors listening to patients and taking them seriously. Treatments should be...
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