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  1. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I was watching it. Interesting discussion, but about halfway in they start rambling about A-personalities and too much social media being the cause for an infection turning into chronic illness. Can't watch more.
  2. Kalliope

    ME/CFS Alert Episode 126: Interview with dr. Walter Koroshetz, Director of the National Institute of Neurological Disorders at NIH

    - In this episode, Llewellyn King and Dr. Walter Koroshetz, Director of the National Institute of Neurological Disorders at the National Institutes of Health, discuss the new goverment funding for long-haul Covid and its impact on ME/CFS research. Dr. Koroshetz is hopeful that the $1.15 billion...
  3. Kalliope

    COVID-19 symptoms over time: comparing long-haulers to ME/CFS, Jason et al, 2021

    DePaul Newsroom Press Release: Study: 'Brain fog' persists among COVID-19 long-haulers quote: Comparing long-haul COVID-19 with another chronic illness could help researchers uncover root causes of long-term illness and inform their approach to care, Jason said. Many other symptoms of long-haul...
  4. Kalliope

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    You must be psychic! :rofl: The article continues with: - Common to several of the research environments is that there is a hypothesis that there may be subgroups of ME patients. Eide Gotaas and her colleagues at NTNU are therefore in the process of investigating whether it is possible to...
  5. Kalliope

    Adolescent and Young Adult ME/CFS After Confirmed or Probable COVID-19, 2021, Petracek et al

    News release from Johns Hopkins Medicine: COVID-19 Story Tip: Case Study Suggests Young People May Be Susceptible to Chronic Fatigue Following COVID-19 quote: A six-month post-COVID symptom onset examination, including evaluations of movement, neurological function and continued orthostatic...
  6. Kalliope

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    The Norwegian newspaper Dagbladet has an article today about the study with enthusiastic comments from Ingrid Helland from the National Competence Service for CFS/ME and Henrik Vogt. The article is paywalled, but here are a few google translated quotes: According to the study, there is no...
  7. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Book review on a Danish news site about health of a book about Long Covid. It mentions ME towards the end. quote: It's completely real, and what people are experiencing is real. And I must say that it is completely different from anything else I have previously experienced as a doctor...
  8. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    BBC program on Long Covid. Might be of interest. Not able to listen with my IP address from abroad.
  9. Kalliope

    General thread on functional disorders in Denmark

    Thanks for adding all these details, @Anders_Vang !Crossing fingers for a positive development in Denmark!
  10. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    That's wonderful to hear. He seems to be one of the doctors who "gets it", and collaboration across borders is great. Well done for connecting people!
  11. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Sympathetic article from Austria, includes an interview with neurologist Michael Stingl: ORF.at: "Long Covid" und ME/CFS - Genesen und doch krankhaft erschöpft google translate: "Long Covid" and ME/CFS - Recovered and yet morbidly exhausted quote: For the neurologist Stingl it was already...
  12. Kalliope

    Paradigm Lost: Lessons For Long COVID-19 From A Changing Approach To CFS, 2021, Hughes, Lubet and Tuller

    Brian Hughes has also written a post about the article: The Science Bit: Paradigm Lost: Lessons for Long COVID Quote: We take the view that change in science is seldom smooth, and that there is no absolute guarantee good ideas will supplant bad ones. Scientific vanity is real. History has shown...
  13. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I think that background made the podcast even more interesting, because he actually seemed to listen and widen his perspective. For instance towards the end he talked about how his clinic has used questionnaires that made them confuse fatigue with depression.
  14. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Sobering talk from dr. Avindra Nath on neurological complications following SARS-CoV-2. The talk was hosted by Body Politic. He mentions post viral syndrome briefly towards the beginning and his research into CFS towards the end of his talk. In the Q&A-session he seems to confuse the PACE...
  15. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This was a good podcast from Pain Speak hosted by dr. Deepak Ravindran, NHS Consultant in Pain, Anaesthesia, MSK and Lifestyle Medicine. The episode is titled: Chat with Darren Brown Co-Founder of LongCovid Physio. Duration: 51 minutes Darren Brown is such a great spokesperson and advocate for...
  16. Kalliope

    Digital ME conference in Stryn, Norway April 13-14th 2021

    A report in PDF with summary of all lectures from the conference has been uploaded to the conference's website. It's in Norwegian, but they're working on an English version as well which will be available once finished. https://www.mekonferansestryn.no/rapportfrakonferansen2021
  17. Kalliope

    NICE ME/CFS draft guideline - publication dates and delays 2020

    I was thinking more of that she seems worried GET might crawl back in again, but agree the research and it's quality must be the basis for changes. Speaking of that it was interesting to see that the CDC review report for diagnosis and treatment of ME that will be available for comments from...
  18. Kalliope

    NICE ME/CFS draft guideline - publication dates and delays 2020

    I got a bit uneasy listening to Carol Monaghan when she talked about the draft guidelines in the video The ME Action Network made for 12th May. She said: The new NICE guidelines are giving hope to the ME community. It's great to see the removal of Graded Exercise Therapy in the draft...
  19. Kalliope

    BPS attempts at psychologizing Long Covid

    Dr. Nisreen Alwan's comment to the study
  20. Kalliope

    BPS attempts at psychologizing Long Covid

    The Danish public broadcaster has an article about a Danish study on Long Covid published in the Lancet. It's a big study with 10 500 Danes that have tested positive for Covid-19. It concludes that few get severe long terms effects. But it seems they define severe long terms effects by whether...
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