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  1. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Full transcript is now available here These are the parts there Koroshetz mentioned ME: WALTER KOROSHETZ: I’d say that from our point of view, I think one thing that David said is really important that I’m trying to develop treatments that will help people. This is the time to do it. I think...
  2. Kalliope

    News and views in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): The role of co-morbidity and novel treatments (2019) Comhaire et al.

    Noticed today this twitter account trying to push Meldonium in threads concerning CFS. Is that even legal? https://twitter.com/MeldoniumS
  3. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    VOX Scientists haven't figured out long Covid. Here are 5 of their best hypothesis Quotes: Most people who get the coronavirus will fully recover and go right back to their lives. But the latest research suggests that at least 10 percent have long-term symptoms, even after their body has...
  4. Kalliope

    ME researcher Jonas Bergquist - interviews, talks

    Try clicking on the "CC" down to the right on the video?
  5. Kalliope

    ME researcher Jonas Bergquist - interviews, talks

    They've added subtitles in English! :):):)
  6. Kalliope

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    This might turn into a column in the Guardian
  7. Kalliope

    A Life Hidden - Blog posts by Naomi Whittingham

    :heart: A Life Hidden - Emily at 40: In Celebration and Sorrow Quote: In the week when Emily would have turned 40, we remember her with love, admiration and grief. A vibrant spirit trapped within a body crippled by suffering, and badly let down by the very system that should have protected...
  8. Kalliope

    News from Scandinavia

    This is how she's titled in the journal: Adjunct Full Professor in Philosophy, University of Maryland Global Campus ETA: This is her twitter bio. Not sure what's the best way to title her.. Diane O'Leary is a philosopher and bioethicist, currently a Visiting Fellow at the Center for Philosophy...
  9. Kalliope

    News from Scandinavia

    There are now 5 responses to this editorial. One in English by professor Diane O'Leary: A balanced view of animosity between researchers and the public The rest are in Norwegian. One by an ME patient, two from the Norwegian ME Association, and the newest from professor emeritus Ola D...
  10. Kalliope

    ME/CFS Alert Episode 125: Interview with Dr. Nina Muirhead

    I believe the prejudice against ME is so deep that speaking up against colleagues after coming down with it yourself will take a lot of courage and receive a lot of backlash. So extra kudos to dr. Muirhead and other doctors with ME as dr. Shepherd for their advocacy work. To be honest, I do...
  11. Kalliope

    ME/CFS Alert Episode 125: Interview with Dr. Nina Muirhead

    Description: In this episode, Dr. Nina Muirhead, an Oxford-educated dermatologic surgeon and an ME patient, talks frankly with Llewellyn King about the diagnosis hole she fell into in Britain, how she coped with her deteriorated health, her wrenching private life (having to stay away from her...
  12. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Science Friday What Does The Future Look Like For COVID-19 Long-Haulers? Interview with Walter Koroshetz from NIH and David Putrino from Mount Sinai. Duration 37 minutes. Koroshetz mentions ME/CFS a couple of times. That Long Covid is an opportunity to learn more about ME as well. As far as I...
  13. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Time has shared the article on social media. They have 12 million followers on FB and 8 million followers on Twitter, so do give a thumbs up and retweet those who can :-)
  14. Kalliope

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Robert Saunders: Thanks. Can you clarify, are you referring to a progress report or the new review of exercise therapy for ME/CFS? If it’s the former, what is holding it up? This was billed as a “pilot project for engaging stakeholders (such as consumers...)”. As a consumer I feel let down...
  15. Kalliope

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Her answer: I'm sorry - I know it's inordinately slow: certainly didn't expect it to be. Not going to pre-empt the report, I'm sorry.
  16. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    So good to see this important issue covered in TIME. Excellent advocacy once again from Wilhelmina Jenkins! TIME: Black Women Fighting For Recognition as Long COVID Patients Quotes: It took five years of chronic pain, nausea, fuzzy thoughts and a cruel mixture of fatigue and insomnia for...
  17. Kalliope

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    The Faculty Lounge What's Going on at the Journal of the Royal Society of Medicine? by Steve Lubet Quote: My occasional coauthors David Tuller (UC Berkeley) and Brian Hughes (National University of Ireland) have an important new article in the Journal of Health Psychology. They provide a...
  18. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    REUTERS The faces in the fog of 'long COVID' There's no mention of ME in the article. Quote: “I feel like my 91-year-old mother physically,” says Dominguez, a mother-of-two and a social worker specialising in disabilities, who has been on medical leave since November. A recent survey by the...
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