Search results

These authors have admitted that a lot of CFS patients have relatively normal activity levels. So what I suspect their theory is, is that active CFS patients have a perception problem, namely thinking that symptoms are due to a yet undetected but chronic, neurological disease called ME that is...

I don't know if it was this group, but I remember researchers making the case that CFS patients have a temporary increase in physical activity at the beginning of the treatment and that this behavioural experiment is helpful in changing their cognitions. So their model would be similar to that...

Thanks for these interviews. It's interesting to hear from ME patients in other European countries. This story from Romania is very sad though. I hope that Andreea and her family can get some support by connecting with the online ME-community.

That's a very nice number, congrats! Could you say some more about how you were able to raise such a large amount? Where there many runners who each brought sponsors or did you succeed in attracting some larger sponsors? Many thanks in advance,

I wouldn't underestimate the competition.

I planned to read this thoroughly later on, but I was so curious that I already had a quick look. Here are my thoughts. Like most of Vink's papers this is a dense source of information (183 references!). This must have been an enormous amount of work. Even the introduction and intermediary text...

Sharpe & Fink wrote an angry commentary about the Van Dessel review because their trial on bodily distress syndrome was not included. See: https://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00233-3/fulltext

They've responded. People interested in helping can contact them at: contact@me-cvsvereniging.nl Just to be clear: it's about translating the 3-4 page summary, not the 100-page report.

Thanks, but I myself am not involved with the ME/CVS Vereniging or the analysis, just passing on the message. I'll send them a link to this thread and see if they are still looking for someone.

Did they tweet about LP or recovery Norway? In the latter, they might have underestimated how much the site promotes LP rather than ME/CFS patients who have recovered. I would like to know if Sharpe is willing to defend LP as an effective treatment for ME/CFS. I suspect that for Peter White...

It seems that the authors of the distant healing study aren't sceptics but really into alternative medicine. There's some irony in this. Millions are spent on unblinded randomized trials using subjective outcomes without anyone studying the reliability of this approach (the team of Asbjørn...

Sure, but I don't have much hope of convincing them given all that has happened. It might influence people who take CBT proponents seriously. The fact that pseudoscience treatments such as distant healing or the lightning process are able to report statistically significant improvements in...

If they had not used blinding they would have got a statistically significant reduction in physical health in the distant healing group. What I think the trial shows is that when you don't use blinding, you create bias because of the expectation of getting the intervention or not. And when you...

This is actually an interesting trial. It's one of the few that tested the effects of blinding and probably the only one that tested this in patients with CFS. It's also a very large study. 409 CFS patients were randomized into four groups: Those who were blinded and received the intervention...

Isn't this what neuro-linguistic programming is about?

In my view the most reliable estimates of CFS prevalence were the studies by Jason et al. 1999 in Chicago and Reyes et al. 2003 (the CDC) in Wichita, Kansas. They found a CFS prevalence of 0,42% and 0,24% respectively. These were community-based studies. They took a community that was...

Idiopathic chronic fatigue was defined by the Fukuda criteria, namely: I assume you mean the Wessely et al. 1997 study, not White 1997? I think they used the same definition as they refer to the Fukuda criteria (reference 20): "Idiopathic chronic fatigue (ICF) was defined as chronic fatigue...

I have submitted a comment on this study to Musculoskeletal Care, but it was rejected because "The journal does not accept commentaries based on the review/opion of one author's work." The journal didn't explicitly say they accept letters, so I knew this could happen. I wanted to give it a go...

Saw this German article on ME/CFS, but the full text isn't available. Anyone seen it? https://www.neuepresse.de/Menschen/Leben-in-Hannover/Nicole-Krueger-leidet-unter-ME-CFS-Ich-musste-alles-aufgeben?fbclid=IwAR0tZStnJCDXEeMtfhSc6vo3pQfZg54dWN4_59yXWenZHZvtGG3KaGLYgDE

It's unfortunate that table 5 only shows the comparison between those who improved and those who didn't improve. This was unlikely to be a problem in the first place. The suspected problem was ceiling effects; patients already scoring the maximum on many of the questionnaire items, making it...