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Regarding the 2day CPET procedure: I don't know if this is true: I don't think we know yet if the abnormalities on the 2day CPET (mostly reduced workload at VT, not VO2) can be seen as a measurement of PEM. Don't think this is correct. In the Hodges et al. study there was no significant...

Another example is the reference to the studies by the Lights on gene expression after exercise. As I understand it, attempts to replicate these results by Cook or Lloyd didn't work out.

This post and others from this thread have been copied or moved to a new thread here One example: The ME Action research summary suggests that a reduced blood volume has repeatedly been found. That seems to contrast with how the latest study on this topic summarized the findings thus far (I...

This post and others on the thread have been copied or moved from this thread on MEAction Research Summary 2019 One example: The ME Action research summary suggests that a reduced blood volume has repeatedly been found. That seems to contrast with how the latest study on this topic summarized...

I think it's great to have such an overview so patients can inform others about current ME/CFS research. Because of the direct links to pubmed it's also really easy to check out the studies. Just one remark: the overview only lists 'positive' studies that claim to have found something. I think...

I suspect It just takes a little longer than expected.

Mi español no es lo suficientemente bueno para leer el estudio, ¿puede alguien resumir si es bueno o no?

Thanks. I'd found it by now, but forgot to update my post. But thanks anyway.

Some info on this here: https://www.cdc.gov/media/pressrel/r061103.htm

Thanks for informing us Andy. This is really frustrating news, though.

Same here. The weird thing was that I could still sprint faster than most of my peers if the distance was short enough (50 meters for example) and I did not have a reduction in strength (for example in lifting a heavy object) if the exertion was short enough. Anyone experienced that as well...

There was the 2013 publication of the Workwell Foundation - by far the largest publication on the repeated CPET to date - that showed the most spectacular abnormality in workload at VT. But it's true that because the VO2 at VT was also significantly reduced, the emphasis was on failure to...

Just to be clear: in Vermeulen's clinic patients regularly get a repeated CPET, so I think that's the data he's talking about - something different and much bigger than his 2010 paper. From listening to the talk (in Dutch) he gave the impression that he wasn't just talking about the VO2max...

I agree with this. Perhaps MEpedia should not claim to be an encyclopedia but just a ME/CFS resource instead. And perhaps the disclaimer should be more noticeable at the top and include a statement that the info is written by unqualified peers or something. But notice that Wikipedia doesn't do...

Well, I agree with that. Everyone has an important responsibility for what he writes publicly and should consider the impact on others. But what you seem to imply is something much stronger: that a person has the full responsibility for everything that he says or writes publicly, as if it were...

Do you really treat everything you say on this forum with the same diligence as when you give direct medical advice to someone? I suspect there must have been conflicts where your own opinion of the research on a medical condition (say EDS or POTS) conflicts with what the current consensus is...

MEpedia has such a disclaimer. It reads: "The information provided at this site is not intended to diagnose or treat any illness."

The draft is what is online now: https://www.me-pedia.org/wiki/Craniocervical_instability If a friend of yours is going to make a medical decision based on an article in the daily mail or on wikipedia, you will probably point out that these are not credible medical sources. There is a...

I agree that it would be best if someone with medical expertise could check the info on that page, but I don't know if I will be able to find someone. Perhaps @Jonathan Edwards could take a look. The post of the pain relief foundation was written with consultation of medical experts, but...

As you yourself said, "Given the level of interest in the topic now in the ME world, it may actually be better to have an article on MEPedia about this topic." I could not find a reputable medical website that gives some accessible information about craniocervical instability and the possible...