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I posted the following comment on Valerie Eliot Smith' blog before reading this thread (the title suggests it's a discussion of the first blog post only). I see that my skepticism of some of her proposals are shared by others. "Interesting blog. Thanks for touching this difficult subject. Just...

Maybe in a country where TV-ads are cheaper and almost nothing is known about ME/CFS, like France, Germany or Italy this could be a good idea. I think however that it's a better (and cheaper) tactic to get the story of ME/CFS in the media by organising events like protest marches, running...

Yes this summary includes my opinion of it (for example that a SF-36 physical function lower than 60 is pretty bad) and I focused on things that could be interesting for foreigners following the debate from afar. The report gives readers the impression that the results were good (modest, but...

Sorry for the long delay. Here’s a short summary of the Belgian assessment report. Part I The first 60 pages give an overview of international developments and there are a lot of good things mentioned. The report says ME/CFS is a serious condition (can be more disabling than MS), recognized...

Wasn't this a problem of the database and ICD-codes rather than of the diagnosis itself? Could be that doctors used these symptoms to make the diagnosis but that this was not recored in the data. Good point. This is weird. Could doctors be using the PVFS code for old people not recovering from...

One problem with these online surveys is that the diagnosis is not checked by a specialist. It is possible that some of the participants had been diagnosed (for example by their GP) as having ME/CFS while they have a different but yet unrecognized illness. I wonder if we should see such studies...

I see your point but maybe the authors of the survey intended it this way so that GET/CBT proponents cannot criticize the definition and argue that what they apply is actually different or an updated version. I think there is a danger that NICE will only acknowledge the most controversial...