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Exactly re psychiatrist. But she was thanking replies when they congratulated her on her 'recovery'. I think she might have been a bit overwhelmed about her book release to give accurate replies so things were misinterpreted as usual on social media.

This was the original post I read full of misinformation from a PSYCHIATRIST. Great story. #MECFS Recovery through gardening. This resonates with the concept of ikigai, a Japanese term meaning “a reason for being." From a neuroscience perspective, the concept of ikigai is about engaging...

Slowly it is being acknowledged that Covid is a cardiovascular disease: “Mazraoui had to take time away from football to deal with inflammation of heart tissue in January 2023 after suffering from Covid-19.” Man Utd's Mazraoui has a minor procedure after palptiations LINK

I get what you're saying @rvallee But will people suffering from ME have to buy her book to find out that she didn't really recover??:emoji_thinking:

Introduction Neurogenic orthostatic hypotension (nOH) is a hallmark feature of autonomic nervous system failure.1 On standing, people with nOH experience large reductions in blood pressure (≥20/10 mmHg) and debilitating symptoms (e.g. light-headedness, blurred vision, and syncope).1 Current...

There is no mention of pacing or B12 injections that improved her health in that article. "Over the next 10 years, gardening helped me rebuild my life".

She is leaving X because of the 'haters'. Chronically ill people are genuinely happy for those who recover. She needs to distinguish frustration from hate. The word hate is rooted in shame, fear, and humiliation.

Without biomarkers stories like this opens us up to mockery imo. Comments refer to pwME as 'haters' and 'militants'.

I understand that, but does the M.E community need this? A spontaneous recovery is fine but her story reads like Jack in the Beanstalk.

Thank you Yes After 5 years my body began to improve I cannot say why I was one of the lucky ones It was then that getting outdoors became possible - with a stairlift Please never give up hope And Pls never let the haters on here bring you down

Dr.Amalok Bansal: "Abnormalities of the pupils to light are seen in patients with cerebral ischaemic events, certain brain neoplasms, local disturbance in neural transmission and demyelination. Checking the pupil reflexes is often undertaken to detect alterations in the brainstem pathways...

I'm Sorry I wasted 3 minutes of my life that I won't get back reading this. "But on my windowsill it sat. And you know what? That little plant changed everything. Helpless as a baby, just as I had been, it needed me. For everything. So, when I woke up each day, it was the first thing I would...

Works fine for me on Chrome

Our immune system? I don't experience pain but there are days/weeks get deep muscle fatigue/soreness right down to the bone. I can barely touch my toes I feel so stiff. I just wake up with it. There are times when I start out for my power walks and feel stiff/sore and after 15...

2020: Always keep in mind that when I say one thing, it actually tells you that I know 10 things. I don’t open my mouth until unless things are tested repeatedly under many different conditions.

It's Canada's first film on Long COVID, created by people with lived experience of Long COVID, produced on a volunteer-basis, for the Canadian Covid Society Justin's Long COVID Story Long COVID is a new, stigmatized condition, still without a cure or much treatment. Justin Lemphers is one of...

Abstract BACKGROUND: COVID-19 is associated with acute risk of major adverse cardiac events (MACE), including myocardial infarction, stroke, and mortality (all-cause). However, the duration and underlying determinants of heightened risk of cardiovascular disease and MACE post–COVID-19 are not...

In the first of a three-part series, new data reveals the burden of Long Covid sufferers in New Zealand, from common symptoms to job losses to reduced quality of life Newsroom spoke to them as part of a new series on Long Covid. This article details the findings of that report. Tomorrow’s will...

Abstract Post-mortem studies have shown that patients dying from severe acute respiratory syndrome coronavirus (SARS-CoV-2) infection frequently have pathological changes in their CNS, particularly in the brainstem. Many of these changes are proposed to result from para-infectious and/or...

I've been able to do moderate exercise on and off for the past 25+ power walking and light weights for my arms. I can not increase muscle or do resistance exercises in my legs. This makes my legs shake and I will get PEM. I've been able to increase muscle in my arms this past year...