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From: Dr. Marc-Alexander Fluks Sent: Thursday 28 December 2017 09:45 To: LOCALME <localme@yahoogroups.com>; MEACTIONUK <meactionuk@yahoogroups.com>; MECHAT-L <mechat-l@listserv.icors.org>; CFS-L <cfs-l@listserv.icors.org>; Colin Barton <colin.sussexme@btinternet.com> Subject: Column: Alastair...

I said they are interested in "trials"; another term is "interventional studies". So studies that measured post-exertional symptoms before and after a treatment of any sort, most likely a questionnaire.

The researcher wants it for a study already completed. So they are not looking for the perfect measure, they just want to be able to cite one or more existing papers. The Rituximab study I found I'm guessing isn't going to be suitable as it is only part of the measure.

https://www.omf.ngo/2016/08/01/prognosis-of-mecfs/

I found this:

A researcher has asked me: does anyone know of any ME/CFS trials that have used a measure of post-exertional malaise as an outcome measure apart from the PACE Trial* *Aside: which published a yes/no measure (they had used a Likert scale but published a yes/no result) Edited to Add: The...

http://solvecfs.org/2017-research-highlights-study-developments-on-our-radar/

[Applause] Thanks. I want to link to it so have copied it into this message: my grandfather was a war hero he flew planes across into France and on secret missions to pick up spies and resistance fighters because they were secret he needed to land his plane by moonlight sometimes lit by torches...

If patients were given information about possible adverse effects or simply that it may not work, they might stop earlier when less harm had been done (or in some cases never start). However, unlike with drug therapies, information on possible adverse effects is generally not given with...

Free full text: http://journals.sagepub.com/doi/full/10.1080/00048670903107559

Done

Yes, the CDC has used some odd exclusions over the years. If I recall correctly, another was a positive Romberg sign

Here are two things I noted in a post on this in 2009 but I think there may be others

(continued) DR. KLIMAS: Factor analysis on the cluster? DR. REEVES: I can't give you a great explanation yet because I barely understand it, but if it works, I promise to explain it thoroughly at the next meeting. Just to quickly finish, in addition to our open-ended --...

I don't think some of these findings were ever published. I'm clearing out some of the mass of paper I have and thought I should highlight it somewhere https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind0910C&L=CO-CURE&P=R2735 CFSCC meeting, on April 22 (1999). DR. REEVES: The...