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  1. ladycatlover

    Finance trumps patients at every level – UK healthcare needs an inquiry

    I don't think this tells us anything we didn't know already, but it's nice to see the Ioannidis paper quoted, and also a lot more papers on how bad research papers can be. Not had time to look into them yet, plus prob won't in a timely manner as have to try travel home tomorrow. Any one else up...
  2. ladycatlover

    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    Actually I'm surprised it's as cheap as £7000. Cost of copies of all evidence for DWP, 3 Tribunal Members, Claimant and (if they have one) Claimant's advocate. My full bundle was something like 240 pages I think. Any new evidence (I took colour prints of photos of ramp outside our caravan as...
  3. ladycatlover

    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    Just went and checked again, and another 93 responses have been added since yesterday, including mine :) (currently page 10 though that may change), November 10, 2017 at 12:55 PM. So it might be worth you re-checking @It's M.E. Linda? Good on you for emailing them though - I wasn't sure I'd...
  4. ladycatlover

    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    I read somewhere (very sorry, I can't remember where :oops: ) that it costs £7,000 for a Tribunal. That cost should be paid by the assessment company for every one that the claimant "wins". That way they might be more inclined to get it right first time! ATOS has changed its name. It's now...
  5. ladycatlover

    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    I looked for mine just now. Not there. But despite it closing on 10th, there are posts dated 11th, 12th and 13th. I spent a whole morning on my submission. When I copied it in it wouldn't all fit, so I cut it by half before posting (I do wish they had mentioned there was a space limit...
  6. ladycatlover

    MyDr: Chronic fatigue syndrome

    Have you been looking at too many Martin Rowson cartoons?
  7. ladycatlover

    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    I finally got my submission in today. Husband caught a gruesome cold from Grandkids, :( and managed to pass it on to me now we're in Wales. :arghh: I've spent most of the last few days awake all night :oops: and asleep all day. :rolleyes: I spent ages this morning doing a detailed post to...
  8. ladycatlover

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Just searched TEDxBristol 2017 crawley on you tube and John the Jack has put up her speech in 2 parts.
  9. ladycatlover

    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    @JCB you really don't have to write a lot. Some submissions are only 3 or 4 lines. Some are essay length. I've been reading bits out to and ranting about lots of them to my poor long suffering husband! I do know what you mean about even thinking about it brings back the stress of it all. It...
  10. ladycatlover

    Esther Crawley - Uni of Exeter 17th Nov Mood Disorders seminar

    Hmm, she'll extrapolate to ME/CFS and then accuse people with mood disorders of stalking her and issuing threats? ;)
  11. ladycatlover

    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    That's fantabulous! :) Why not ask her what she thinks about the above paper on social sculpture? Psychotherapy isn't at all like "social sculpture" - she'd probably be horrified by it. But don't feel you have to of course. :)
  12. ladycatlover

    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    Thanks for this reminder @Andy! I've been reading the submissions thus far over the last few days - mostly they are absolutely horrifying. Seem particularly so for Autism Spectrum Disorders, including Aspergers. From what I recall there aren't that many for ME/CFS yet. A few for Fibro, but...
  13. ladycatlover

    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    It's all Me Me Me isn't it? (please can I request a Barf emoji?) Just like the rest of the Psycho lot.
  14. ladycatlover

    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    Not to mention the money spending rankings :banghead: and rubbish PhD rankings :speechless: so idiots like this can call themselves "Doctor". :eek: Socktor more like! ;)
  15. ladycatlover

    Osteoporosis (bone loss)

    Might be quite useful for me - could cut out the Cosmocol :sick: that I have to take every day! :) (For diverticulosis :eek: )
  16. ladycatlover

    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    Or you can have the best of both worlds... A unicorn pony with wings! :rofl:
  17. ladycatlover

    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    I'm guessing they might be My Little Ponies? ;) Though they look less like ponies now than they did when my girls had them back in the 80s! This looks more like a deer that has sprouted a mane. :sick: :arghh: :eek:
  18. ladycatlover

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    :sick: :sick: :sick::emoji_scream_cat: :emoji_japanese_goblin: :emoji_scream:
  19. ladycatlover

    PRO/EDR> Acute flaccid myelitis: human enterovirus D68

    From this enterovirus? Or similar symptoms or problems? If so, maybe your local health authority should be alerted? Sorry for such poor reply, very tired tonight after long (for me) journey yesterday. ProMED mail is a recognised authority I believe, so share that mail if you need too. Best wishes.
  20. ladycatlover

    PRO/EDR> Acute flaccid myelitis: human enterovirus D68

    Opened up my email this morning to find this article, seems to show some similarities to the more severe forms of ME. Shame health authorities don't treat ME as seriously as this. I obtained permission to copy ProMED posts to other Lists and websites many years ago. Just so you know that...
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