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Trial By Error: Three Years On... Three years ago this month, Virology Blog published my 15,000-word investigation of the PACE trial, so this seems like a good time for a bit of reflection. I certainly didn’t expect this saga to drag on this long. I’ve kept at it mainly because of the UK...

It was a tweet by dr. Keith Geraghty which now seems to have been deleted.

Yes, it has been corrected now :) The point that's made now regarding the PACE trial is that this trial too has received criticism. But it says that the PACE trial is a trial on CBT as treatment for ME. They forgot the GET-bit.. Samtidigt påpekar han att liknande saker har inträffat förut och...

Not able to go through a lot of text now, so could someone please direct me towards the requirements for ME patients they're requiting? It is interesting that they'll accept patients from abroad. But only those who have been ill for less than five years? Are there other requirements?

MEAction: #MEAction protests Per Fink at Columbia University - Here's what happened Donny Moss, an able-bodied activist and ally, managed to enter the conference room where Fink was speaking to disrupt his talk by yelling, “Spreading this misinformation about people with ME is reckless. When...

@mango shared in the Scandinavia thread that the Swedish news site for medicine, Dagens Medicin, has a paywalled article about the Cochrane withdrawal. I had a look and here is a summarisation in English. Nothing new, and odd that he claims the PACE trial has also been withdrawn, but he makes...

You can subscribe for free for one month to the online version (I just did) This is an article about the Cochrane withdrawal with an interview of ME doctor Björn Bragée. He is not surprised that the review gets withdrawn. He says this patient cooperative is not like any patient cooperative...

Article from WAAY-TV HudsonAlpha Scientist Receives $45,000 Grant To Study Causes Of Chronic Fatigue Syndrome Worthey said her team will be partnering with a team at the University of Alabama at Birmingham. She plans to start genetic analysis of patients in a matter of weeks.

This twitter thread started off with the Cochrane withdrawal, but turns into a discussion about PACE. And since several here are blocked by prof. Sharpe, thought it might be of interest. I had to split it up in three posts in order to show all the tweets:

The Swedish public service television company with a news segment about ME patient Sture. He was rejected social security, but after a long battle finally won. Not able to provide google translation, but it is a sympathetic article. SVT: Kroniskt trötte Sture får rätt i Förvaltningsrätten efter...

New blog post from initiator Nina E. Steinkopf. This time with an overview of surveys and research supporting patients' claims that exercise makes us worse. She asks whether it really is the patients' task to gather this research, shouldn't it be the Competence Service's job? Forskning som...

I only had a peek at that debate. Did some of them claim that Larun didn't even have a chance to reply to the criticism before the decision of a temporary withdrawal was made?

That's a good point. And it was stated clearly that it was the quality of the applications that counted in the end, not patient's opinions. I was trying to watch today's seminar from an objective point of view, and I think all in all this was a good seminar and left the impression that the...

Here's a chance to give Carol Monaghan a thumbs up and/or an appreciative comment.