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Paul Keeble has some final comments on Social Care, apparently Dr Roy will be questioned tomorrow morning Maeve raised a safeguarding concern herself, about lack of care for her from the Council; Council has no record of this. Sarah Boothby was left to care for Maeve despite telling Council...

I am a little bit reassured that, around the internet, non-ME ppl are pointing out disorders and diseases where feeding is given by NG/PEG and saying “but we do it for X, why wouldn’t they do it for ME?” The public are able to see things like sensory issues, nutritional intake in other illnesses...

Some tweets about the questioning of Dr a weir by RD&E Hosp representative - of note is that Dr Weir is advising to go against Royal College of Physicians standards re feeding, which Dr Weir points out aren’t right for pwME

likely, but can’t confirm as no information on X either way. Maybe @dave30th can update us later?

I believe Dr Roy is the Gastroenterologist at the hospital and he was against TPN due to risk of sepsis, mentioned briefly yesterday. Assume he will have been called to give evidence to the Inquiry, we don’t know in advance who is appearing so we’ll have to wait to see.

I’m Jumping back to Dr Weir’s evidence, as I think this is a really key point, he referred to a report in 2002 regarding feeding for pw severe ME, a tweet suggests it’s this one. https://me-pedia.org/wiki/Chief_Medical_Officer_Report_2002 http://www.erythos.com/gibsonenquiry/docs/cmoreport.pdf...

Some tweets about Social Care evidence. It seems they “insisted” on contact with Maeve, eventually accepting she wasn’t able to do that

Dr Weir has finished. The next person is Mrs K Bradford of Exeter Council, Adult Social Services team manager

From various tweets it seems Dr Weir has said that with IV Saline and nutrition, most patients recover to where their life isn’t threatened.

Paul Keeble is also back on twitter “Dr Weir is seeing patients as unwell as Maeve about every 6 months” “Feeding in the community. NG then rapidly NJ then PEG most patients end up with PEG”

But a “regular person” wouldn’t be expected to understand ATP or biochemistry or research specs. I think if the Daily Mail and Co were saying “Maeve had ME/CFS which is an energy-limiting condition” rather than “Maeve had Chronic Fatigue” it would do a lot of good for public perception.

Good reply there.

It was 2021, I’d say Covid was at its worst the year before in March 2020

I think I’d do a leading introduction “It was said at a recent Coroner’s Inquiry that there is no specialist service for severe ME in the NHS. Does your area provide any services to patients with Severe or Very Severe ME/CFS? What accommodations are in place for pw S/VS ME please state Have...

This telegraph piece is excellent Link if you can’t use the paywalled one above https://archive.ph/fRT5B

I believe in his evidence he said pwS/VS ME get a side room with black out curtains automatically plus there has been specific S/VS ME training for nurses Perhaps the Drs and Consultants could get that training too?

Apparently starts at 9.30am tomorrow

From written evidence, GP Dr Shenton “I don’t believe I can put ME on the death certificate because many of the Drs involved do not believe ME is a medical condition” “Multidisciplinary was installed too late. Everything was too late”

No time for Dr Weir today, he will be up tomorrow morning.

P Keeble is crashing so won’t report much more today (hardly surprising this would take a toll on anyone) “Maeve asked about contingency plan for if NG doesn’t work, on 28 June. It seems there was none” I will look around twitter for snapshots of the inquest. Apparently Dr Weir is up this...