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That's a terrific find @jaded. What an interesting conversation. I have made some notes and will try to write them up. The auto antibodies Avi refers to are, I think anti-idiotypic antibodies. (The captions on my screen kept referring to them as anti-idiotic antibodies, which was a little...

Yes, just in case anyone gets confused despite Tom's clear instructions (somehow I managed to, momentarily): to vote for the Irish ME/CFS Association, click on the link in the second post of this thread scroll down until you see the form with "20100254 - Irish Myalgic...

Maybe it can't be hidden from the technician. But - maybe have a schedule of changing the filters very frequently for both the real and sham apheresis. Ensure that the patient doesn't see the filters and the technician does not engage with the patient. Make the sessions shorter so that the...

I think it is quite hard to disentangle the consequences of concerted disrespect. If you know that saying you have ME or CFS will cause you to be treated as a hypochondriac or drama queen or someone whose reports about symptoms should not be trusted, then you might be careful who you tell. The...

Gustavo Chang: National University of San Marcos is in Lima, Peru This may be why Professor Pretorius specifically warned against taking aspirin. Aurora Figueredo:SIGESA

Preprint ME/CFS, FM: Mitochondrial dysfunction in diseases presenting chronic fatigue and brain fog is associated with cellular hypoxia, hypoperfusion, endothelial dysfunction and persistent clots. Abstract Analysis of Venous Blood Gases, Lactate and D-Dimer is recommended in patients with...

From Snow Leopard's post, quoting the Squeezing for Life article: Maybe this can explain why our ability to function can sometimes increase when it really has to? The adrenalin released increases RBC deformability, so there is more oxygen delivery to tissues.

They had 20 controls and 20 patients. The patients were highly highly selected, in particular having many infections including recurrent herpes outbreaks: It's a bit hard to know what they found in terms of autoantibodies. But they seemed to find a lot of autoantibodies to gangliosides. I...

There is an English version. click on the first link and look for ENG(PDF) It's one of those ones where you wonder if there is a kernel of something important hidden by the very poor presentation and missing information.

I've replied to the poster on PR, pasting in a copy of the Science for ME's press release.

"Simon Lehna Singh, MBE (born 19 September 1964) is a British popular scienceauthor, theoretical and particle physicist whose works largely contain a strong mathematical element. His written works include ... Trick or Treatment? Alternative Medicine on Trial[10] (about complementary and...

I've listened to the talk with Professor Pretorius and it's intriguing. These microclots could well be real. But so far, I think we only have her lab saying they have seen them? The lab work to see them doesn't sound difficult, so I hope we get some independent studies soon. Assuming they...

The reason I wanted to post this paper is that it gives the level of fatigue reported by a general population sample, using a range of fatigue measurement tools (all surveys). Females reported higher levels of fatigue than men using every scale - quite a lot more. And it's not because the...

Demographic Correlates of Fatigue in the US General Population: Results from the Patient-Reported Outcomes Measurement Information System (PROMIS) Initiative https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3744100/. free access Abstract Objective To investigate demographic correlates of fatigue...

For those of you wondering what the 'small number' in the title of this paper actually means: So, yes, it is pretty small. My bolding. So, we can't be sure what percentage of people (i.e. percentage of the 23 people) have fatigue after a year. There are a lot of problems with this paper that...

I'm thinking there are quite a few translation problems in this paper, making the errors about Long Covid and ME/CFS worse.

Just looking back over the slides, from slide 7 there is a long discussion about thrombospondin-1. That's interesting given the latest work on microclots and the findings of elevated biomarkers related to thrombosis, including, I think thrombospondin-1 (Edit - no, it was thrombin - but they are...

We have a link to an Austrian petition here - note the deadline: Austria: Petition: ME / CFS: Recognition, Medical Care and Protection of the Affected, and Research Funding, closes 22 Nov 2021 It would be great if an Austrian member could tell us some more about it.

Also this thread, which was linked in the latest discussion. Kings College London: Persistent Physical Symptoms Research and Treatment Unit

And I'd suggest that the percentage of people reporting gastrointestinal symptoms who reported pre-Covid-19 mental health symptoms (5.2%) is well under the prevailing prevalence of mental health symptoms in society, even if the criteria is a good deal more demanding than 'sadness'. Australian...