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Joshua, you seem to be suggesting people with HASD CFS/ME have chronically elevated cortisol levels. The reference you give doesn't relate to the elevated cortisol part of the sentence. What makes you think people with ME/CFS have elevated cortisol? Looking at cortisol in ME/CFS studies...

@Simone, do you know anything about this study, or Campo and Taylor? How did they get hold of 21 CFS patients?

It's an open label study. The authors don't tell us how 'no more CFS' or 'improve in fatigue and general symptoms' was measured. So, unfortunately, this study doesn't really tell us anything. The reported complete cure of CFS in 5 out of 21 patients is interesting. But there are so many...

https://onlinelibrary.wiley.com/doi/full/10.1111/imj.11_14849 (It's free access but I think it's just a poster) Jorge do Campo 1 and Vivienne Taylor 2 1 Noosa Hospital, Queensland, Australia 2 Ibuki Medical Centre, Noosa, Queensland, Australia Abstract Background: Epstein Barr Virus (EBV) is a...

There were two patients. Sure, that's a small number, but we've also seen the published paper that appeared overly confident about the utility of Ablify and that suggested that patients were being lost to followup. Yes, the utility of a drug and the ethics of doctors promoting it are not always...

That's not really true. If the trial has a reasonable size, then it's likely that any benefit in a substantial subset will bring the average response above that of the placebo treatment. If the changes are charted, it should be possible to actually see that a treated subset benefitted. I'm...

Terrific tweet from Simon DeCary, Canadian Long Covid researcher dismissing suggestions that ME/CFS activists have put researchers off investigating the condition: Link posted here:News from Scandinavia

It looks very good - there's a lot in there. Key aims include getting good guidelines and ongoing efforts on research (including the biobank) and education. Some initial responses: I note that there is an aim to serve every Australian. I'd like to see some research into the prevalence of...

This thread Severity of Acute Infectious Mononucleosis Correlates with Cross-Reactive Influenza CD8 T-Cell Receptor Repertoires Nuray Aslan et al 2017 discuss Selin and Gil's work. It's also mentioned here: The possibility of autoimmunity or auto-reactivity in ME/CFS (edited to take into...

Don't forget to vote

I found some data on the categories of things people are seen for in primary care in a region in New Zealand, I think I posted about it somewhere. At least in New Zealand, this idea that 50% of consultations are about symptoms where a biological cause is not known is rubbish. There are...

Some posts about David Tuller's latest blog have been moved to BPS attempts at psychologizing #LongCovid

There is a high level of skepticism on this forum about people who claim to have discovered a treatment protocol. This is the natural result of having seen many such people (some with very strong scientific backgrounds), with none of the protocols bearing fruit. It's also a natural result of...

Oh dratalanta, I think the infiltratration of the BPS plumbers into society goes much further than clogged lavatories... :cautious: More on this here:

Oh, for goodness sakes. You can drive a bulldozer through the holes in this. In addition to all the good points before, a couple more of the many that could be made: Me-forum is reported as having 50 registered users per 1000 cases, and the 2,400 total users managed to make about 500 messages...

Oh yes, you are right, somehow I missed those pairs of r2 values. ( I should have been asleep at the time.)

Yes, regardless of the statistics, it's an approach that should be used a lot more when choosing which research proposals to allocate funds to. I recall one proposal to trial a mixed supplement for ME/CFS. Some of the evaluators thought that it would be a nice project as it might produce a...

An iceberg is altogether too pure for this metaphor, I'm thinking 'fat berg' might be more appropriate.

Yes, but if they are saying 1. there was a significant but weak association between the activity diary and the activity monitor for CFS patients (and presumably no significant association between the activity diary and the activity monitor for healthy controls), and 2. there was a moderately...

I was able to vote (from NZ). I'm sure koalas qualify.