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    Opinion Appraisal of Clinical Practice Guideline: NICE clinical practice guideline for [ME/CFS]: diagnosis and management, 2024, Sarah Tyson

    Unless the person feels ready to progress? I find the idea people think these things and say them in such a way so weird what do others think is the correct term on this ‘issue’? the idea there will be patients who ‘need help to progrsss’ ? Does this exist? I suspect it shows people who...
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    Brian Walitt and his role leading ME/CFS research at the USA NIH

    I like it. I slightly think of the Bechdel test too where it looks in films at whether they actually contain a female character that fulfils certain criteria rather than being a flunky. I wonder whether there is some inverted type of ‘score’ that could be given where papers get points for...
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    Making a 'Charter for Ethical ME/CFS Research'

    thank you :) I shall :bookworm:
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    Making a 'Charter for Ethical ME/CFS Research'

    Sadly the ethics issues have happened and ended up occuring under these stages. like retrospective studies taking cherry-picked 'records' from patients at their clinics. or studies that part-way through decided to drop the primary outcome that subjects' consented to, but carry-on regardless with...
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    Making a 'Charter for Ethical ME/CFS Research'

    I get why you think that but sadly when you think about how markets work it is actually the opposite way around. Doing research badly is both cheaper and quicker. At first the majority might be able to sit with their integrity and feel better about being better researchers until they find that...
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    Making a 'Charter for Ethical ME/CFS Research'

    except for the retrospectives done by those who ran CFS clinics it seems
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    Making a 'Charter for Ethical ME/CFS Research'

    and of course power corrupts. wherever you think it is placed, it either changes those who get it, or those who chase it play the game etc. I do think, however, that 'tooling up' and 'requiring responsibility' from those who are placed in any position where they are representative, whilst...
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    Making a 'Charter for Ethical ME/CFS Research'

    Spot on. And there should be a guarantee that null hypotheses or refutation of theories are as straightforwardly reported as one would expect. Otherwise it is effectively not only a waste of funding for that, but a step towards more wasted funding on the basis of things never being refuted or...
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    Making a 'Charter for Ethical ME/CFS Research'

    In my mind this sort of thing probably is a bit like that phrase people say about good law: where the best law means that most don't notice it I think that those who engage in good conduct might read the top-level asks on this and be a bit confused thinking 'isn't this obvious and what we...
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