Search results

The way he used to present himself in Private Eye, with the concerns he raised about how patients were treated by medical staff, makes his continued support for Esther Crawley (his boss), look totally ridiculous. Has he made any comment on Crawley's misrepresentation of the cover of the Sunday...

I get the impression AfME realise their positions on PACE have been shown to be indefensible, but don't want to acknowledge that. So they're just adrift, trying to avoid the most important issue for improving that way that patients in the UK are treated. If they want to rejoin reality, and...

Has anyone got a copy of the new guidance? It would be interesting to put it through some software that lets us find all the changes. edit: got a copy now, thanks.

Some videos can still be viewed: edit: And if you click through there are more videos listed on the page. Not sure I can bring myself to go through it. Sonya started off pointing out how every years she talks about what an exciting year it has been and how it's going to be even more exciting...

I just checked Coyne's twitter feed, and it seems he is getting criticism for this bit on twitter. I've always been a bit puritanical on age differences and teenage sex, 18/16 seemed a creepy gap to me, but this does seem like a needless mess in a blog about the ACE. I wouldn't move from talk...

I've seen so many different sorts of people complain about the 'corporate' charity types who seem to have come to dominate UK charities over the last two decades.

Did they interpret it as you asking for recordings of interview with patients, etc, or just the outcome data? What info did you want to request?

Someone was posting about Davis looking for ongoing viral infections recently, and it looks like a null result for this (edit: although Sasha says these results were from long a while back):

https://www.disabilitynewsservice.com/response-to-benefit-assessment-inquiry-breaks-commons-records/

Your interpretation of the conversation is quite different to mine. I don't recall anyone saying your info was pointless, but instead thought there was a discussion about what points were sensible to focus on for advocacy efforts, and what might distract from our central concerns, or even risk...

If we're talking about the same post, I don't think that it was intended to be implied (and I didn't take that implication from it). I thought it was more about raising concern over how prejudices around CFS patients could affect how things are interpreted.

Has van Gool ever apologised for this? Or commented on it in any way?

Thanks. I'm terrible at engaging with these sorts of things live. Any noteworthy things anyone else noticed?

Thanks. And thanks to whoever did the transcript. This was part of the session chaired by Trudie Chalder: https://royalsociety.org/science-events-and-lectures/2017/09/neurobiology-fatigue/ Looks like the panel discussion is available here...

I don't think anyone here accused you of 'stalking'! It is good to fact-check things, but given the sensitivities with this, it probably is worth being aware that any possible inaccuracies about family history are likely to be seen as less important than misrepresentations of studies/patient...

This year has gone so quickly for me. We're already in November?! I wasn't expecting the AfME AGM for ages. Oh - seems there's a video here:

Cochrane reviews are farmed out to different authors. The PACE trial's Peter White was a co-author of the protocol for the review of exercise therapy currently being conducted, along with lead author Larun, who in an earlier review claimed PACE had a low risk of bias and then failed to engage...

The faith some people still seem to have in peer-review amazes me.

Errr... not confidently. I always forget what exactly those terms mean and how those figures should be calculated. Maybe it refers to this?: https://www.ncbi.nlm.nih.gov/pubmed/25066148

I'm sure they've posted a nearly identical article before! Still, it seems that it needs repeating.