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A comprehensive article comparing the vaccines and explaining the vaccination programme rollout in the UK (I was able to access this without a Telegraph subscription): https://www.telegraph.co.uk/global-health/0/covid-19-vaccine-moderna-oxford-pfizer-update-coronavirus/ I find reading some of...

At the moment they are only contacting those in Tier 4 with this information.

I think the title is quite an interesting choice, as it is revealing of the expectation bias so many researchers have in the BPS field. Anyone who judges a study without even reading the abstract can't be taken seriously. The abstract itself gives a summary of the negative findings to the...

Has his family got in touch with the 25% severe ME group in the UK? https://25megroup.org/

It will be interesting to see how Somerset CCG respond to the new ME NICE guidelines, since they spend a paltry £60,000 per annum on the current Specialist CFS/ME Service (for a population over half a million). It doesn't even offer a diagnostic service, just a few sessions of CBT or GET for GP...

It also allows you to see how many times it has been accessed and I think it also shows which members have downloaded it (but it's years since I used my account so I may be mistaken about this).

Not really been following this thread, but the RCGPs have produced a information leaflet on this, with links to some E-learning...

The trouble is, the converse could be true for other patients. They might find that eating 3 regular meals helps reduce their nausea. In another part of the guideline it states there is no evidence to recommend a restrictive diet, but these also help some patients. So really, I think some of...

That is why we need to re-present the patient survey evidence (and any other relevant evidence) back to them as part of the stakeholder response. Because at least this time they will have to publish their response to the stakeholder comments, for the historical record.

Some of these are merely suggestions, rather than 'recommendations', i.e. just things that are suggested that may help other patients. Regarding the nausea section, I don't think specific recommendations should be made, it should just say that GPs and consultants should offer the same...

Were these BACME members of the NICE ME/CFS committee sitting with their fingers in their ears, shouting, 'La, la, la, I'm not listening', when the patient survey evidence was being discussed??? Sorry, for the outburst, but I'm feeling pretty fried thinking about the loopholes in the draft...

Worth re-reading this: https://www.meaction.net/wp-content/uploads/2019/10/Your-experience-of-ME-services-Survey-report-by-MEAction-UK.pdf

I think all the NIHR committee members that examine and choose which research applications they approve for public funding, should have to attend training by Jo where he delivers the content of his evidence submitted for our guidelines to them - in person, to enable genuine learning...

I also only got priority delivery from Waitrose after I had my first delivery, although I didn't need to do that with Tesco or Sainsburys.

She can resubmit the form with the 'right' answer to this question, so she gets priority delivery. You can update your answers as often as needed, but it can take a week or so for the information to get to the supermarkets.

What we need is a CARE plan, not a 'management' plan. In the autism guidelines they refer to a 'Personalised Plan', which is centred around ensuring the person has the right care and support. https://www.nice.org.uk/guidance/qs51/chapter/Quality-statement-3-Personalised-plan

I agree that the USA MEAction appears to be doing this, which is why I said in the early post (where I gave Autistica as a positive example) that I think it would be wise for the UK branch to consider separating themselves from the original organisation, so we are left with a patient led...

I don't know how others feel but I feel that the MEAction charity is being a lot more proactive on actually fighting for real change in our daily lives. I have no idea if this sort of patient led advocacy is being suppressed in the more 'top down' ME charities. I didn't gain anything from being...

I was thinking this too. There was a similar problem in the autism community with Autistica originally being affiliated with the damaging USA organisation Autism Speaks when it was first being set up. However the UK organisation has distanced itself and has shown it has completely different...

When I had these swabs done in hospital I really struggled with the my gag reflex and the nasal swab also made me cough and choke, so there's no way I would be able to take these swabs properly myself.