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NICE are currently developing an official clinical guideline on Thyroid disease. See: https://www.nice.org.uk/guidance/indevelopment/gid-ng10074 https://www.nice.org.uk/guidance/gid-ng10074/documents/stakeholder-list-3

If this is the case then the GP(s) haven't read the full recommendations! See below [bolding mine] This recommendation may not apply to Those with severe symptoms, as few were included in the studies reviewed. However, there is no clear evidence on how to attribute symptoms to SCH reliably...

When my daughter plugs in the hoover my cats run away. When I plug in the hoover they just sit still and look at me - knowing the probability of me actually using it is very remote...

This is also true for me - when in PEM. However, at the time of using my muscles for a specific physical activity the immediate fatigability is in the muscles I am using (e.g., arm or leg).

Seconded!

Yes, definitely (for me too)! If I overdo things on a 'better day' than I find it hard to go to sleep as I feel mentally 'wired' but physically tired. But the 'crash', extreme worsening of all my ME symptoms (physical and cognitive) happens the next day - only after sleeping - sometimes...

This is exactly how I would describe my sympoms with regard to fatigue and PEM.

I've just been exploring my local Chronic Pain Service's website and came across a link to this video: [In the top left there is an icon which links to the playlist of the 6 videos covering the complete lecture] In it the speaker mentioned a term new to me, 'Chronic Overlapping Pain...

Link to useful document explaining the various problems and solutions: http://www.bre.co.uk/PDF/SOUNDINS_HOMES.PDF

I've used the Cashplus Prepaid 'Flexiplus' Mastercard in the past: https://www.cashplus.com/pricing/ As I rarely used it, it was most economical for me to pay the £1 charge per transaction with no monthly charges, but there are other options available. It was very convenient to use as the...

@large donner - Have you considered taking up the 'patient involvement' opportunity to 'co-produce' the Plain English summaries for NIHR and MRC research projects? :nerd::D

I wouldn't usually post the news from the Benefits and Work website, but this item will be relevant to anyone claiming ESA or UC. From 26th March updates: In spite of the risk to claimants’ health, the DWP are wilfully discouraging doctors from issuing fit notes to employment and support...

I just wanted to bring to the attention of UK members that there are opportunities to obtain complimentary (free) tickets to the regular Westminster Health Forum conference days. These usually take place 9 am - 1 pm in London, but occasionally they are delivered in other cities. An example of a...

Well, they definitely would have benefited from the workshop I attended at Exeter! As would the PACE authors...

I don't think the people who run PHWE have any influence on the research being done by University of Bristol. It really wouldn't be appropriate to use the workshop for this purpose as it is designed as a learning opportunity for members of the public. It may be appropriate to use SMILE, FINE...

Looks like they are also offering a workshop (March 28th) on 'Digital health and use of data': https://www.eventbrite.co.uk/e/an-introduction-to-digital-health-and-use-of-data-tickets-57778296440

This is an opportunity for members of the public to attend a free workshop: 'The workshop will give you an introduction to research and the tools and skills needed to find research evidence relating to health and assess its reliability.'...

Amber Rudd recently announced a proposal to combine the face to face assessments of PIP and ESA (or Universal Credit) into one: https://www.disabilitynewsservice.com/reaction-to-rudds-reforms-tinkering-crumbs-and-fears-of-a-trojan-horse-for-cuts/ However, I believe this 'cross-referencing' has...

I received an email today that the NIHR (England) is seeking new committee members. I haven't had a chance to read through the details so am unsure of who this may be relevant to, but more information can be found at the below links...

See these links: https://www.england.nhs.uk/mentalhealth/wp-content/uploads/sites/29/2016/10/early-implementers-map.png https://www.england.nhs.uk/mental-health/adults/iapt/mus/sites/ https://www.england.nhs.uk/mental-health/adults/iapt/mus/wave-two-integrated-iapt-sites/