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If you are eligible for social care, you should be actively involved in producing a personalised 'Care Plan' (again, you can draft this yourself initially, but it will need to be agreed with the social worker). I think I will start a new thread specifically for 'person centred' care planning...

There is currently no legal right to appeal the council's final decision, although you can make a complaint to the council and then the ombudsman if you believe they have made errors in the assessment and judging your support needs. This is why it is so important to ensure a comprehensive and...

Under the Care Act (2014) a person is entitled to carry out a 'Supported Self-Assessment'. This may be a much better option for ensuring your needs are accurately documented and evidenced. Many councils (including my own - Somerset County Council) will not inform you of your right to do this and...

Under the Care Act (2014) individuals with a defined 'substantial need' are entitled to have advocacy support for their assessment. Many people with moderate to severe ME would meet this threshold if they have significant cognitive and memory problems or difficulty...

The most useful site I have found is the professional site for social care education, SCIE. Here you can learn a lot of the stuff your council would prefer you not to know! You need to register with the site to download files, but they are free. The link to get started with is...

I have read various posts referring to the difficulties involved in obtaining appropriate social care but cannot see a specific thread for advice and links to the relevant legislation and appropriate guidance on this issue. The legal rights and thresholds to social care varies by location, so...

I do not know about South London, but some urban areas have 'Law Centres' - charities which will support benefit claimants at appeals. For example, Bristol has: https://www.ablc.org.uk/ It may be worth doing a search to see if you have something similar in your area.

If you haven't done so already if you sign up with the 'Benefits and Work website' as a member - they do have a forum with some very experienced moderators who may be able to answer your specific appeal process questions: https://www.benefitsandwork.co.uk/forum1 They will probably make...

@Diane O'Leary Thank you for your continuing interest in advocating for people with ME. I have read your paper and have tried to make sense of the terminology you have used from the perspective of an NHS patient in England. I admit that it was a little confusing trying to 'translate' your...

Parents trying to get an autism diagnosis for their child are vulnerable to being accused of FII. Parents who have undiagnosed autism are even more at risk of being accused of this. Even mothers with a clinical diagnosis are at risk of being accused of 'encouraging autistic behaviour' in their...

You would have to register with the Inland Revenue as an employer, be liable for employers' NI, be responsible for administering the PAYE, pay holiday and statutory sick pay, pension contributions plus any redundancy payment that might become due. If the carer was registered self-employed (you...

I agree, but having international objectivity adds a lot of impact to the arguments being made. The MUS agenda seems to be prevalent and growing in at least a few other European countries. The UK NICE guidelines around CBT and GET have had a negative impact on ME sufferers across the globe, so...

A file was uploaded by mistake. I deleted it.

I wonder how much of this 'investigative journalism' has been stirred up to try and distract @dave30th from the work he wanted to do around IAPT and MUS? How much of his valuable time has been lost to addressing all this cr*p? As you can see from the below link, MUS are now being firmly...

I agree absolutely. These are highly paid, experienced medical healthcare professionals. I personally know many people who are working in low paid care worker roles (in mental health support) who receive face to face death threats from their 'clients' on a regular basis. These workers are not...

This ongoing insanity from the government has been thoroughly dissected by the Spartacus report: https://spartacusnetwork.files.wordpress.com/2017/02/richardsonbenstead-smokescreen-2017.pdf It is a consciously chosen strategy to promote an ideological agenda, not about true compassion and...

It is a bit off topic now. However, one thing that underlies the Green Paper on welfare reform for those on ESA is that is is based on the same kind of pseudoscience as is the BPS model of ME (and the RCGP training). I think there is a huge can of worms here. I will try to make comments relating...

The latest report on the 2017 Green Paper on Welfare Reform for disabled and sick people (incorporating the responses to the consultation) show where the government are currently at in their desire to bring about change in this area...

I think that moving towards this type of model was the thinking behind the controversial 2017 Green Paper, available at: https://www.gov.uk/government/consultations/work-health-and-disability-improving-lives/work-health-and-disability-green-paper-improving-lives See the following for a brief...

Yes, I searched this site too after reading the recent Parliamentary Briefing Paper, available at: http://researchbriefings.files.parliament.uk/documents/CDP-2019-0014/CDP-2019-0014.pdf On page 10 of the paper the authors write: Figures on research expenditure for specific conditions are not...