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  1. Simbindi

    Low oxygen SPO2 anyone?

    The article discusses this and other causes that can affect readings or where the reading needs to be taken with caution.
  2. Simbindi

    Low oxygen SPO2 anyone?

    Useful article, explaining in relatively simple language how they work and how to correctly use them: https://www.nursingtimes.net/clinical-archive/assessment-skills/the-correct-use-of-pulse-oximetry-in-measuring-oxygen-status-01-03-2002/
  3. Simbindi

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Either way, she was chair of the RCGP when the training was developed 2010-13, so cannot claim to not be involved in promoting it.
  4. Simbindi

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    She did the videos for it, along with Chew-Graham, so was fully involved in it's development. Someone put the relevant clip up on the Twitter thread.
  5. Simbindi

    Trisha Greenhalgh on ME/CFS and Long Covid

    This is a serious problem in our mental health rights/legislation/support, where a certain psychiatrist has been playing a lead role. He hasn't just upset the ME community, but lots of other disability groups...
  6. Simbindi

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    So a lot of people (including professionals) are still unaware that it was CG herself (not her husband) who authored the e-training on CFS/ME for the RCGPs, and that her statements on exercise couldn't possibly be an 'enthusiastic slip of the tongue'.
  7. Simbindi

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Did the BBC just randomly choose these 2 people to invite on to their news programme to convey their 'personal experience'? Surely not, they must have been selected as perceived 'medical experts' with personal experience of having had Covid-19. She made an emphatic statement that there is no...
  8. Simbindi

    Trisha Greenhalgh on ME/CFS and Long Covid

    She didn't just demonise our lived experience, she authored an e-learning module for GPs that actively taught her professional colleagues to promote treatment that ME/CFS patients have consistently reported causes significant and sometimes permanent severe harm.
  9. Simbindi

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    https://www.networks.nhs.uk/editors-blog/supporting-staff-the-emergence-of-2018long-covid2019 Full article can be read via the link given. It is primarily aimed at NHS workers. Edit: Apparently the Wessely quote is quite old and comes from this article...
  10. Simbindi

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Besides not having long Covid, I think that Boris Johnson wanted to exercise more due to his obesity. In this sense I think he is trying to be more of a 'role model' with regarding to following a healthy lifestyle, of which exercise is just one aspect.
  11. Simbindi

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Well, she's now disqualified herself from writing, or having any involvement with developing, the new/updated training module on ME/CFS for GPs.... This statement also clearly shows how inappropriate the (only recently removed) RCGP one was.
  12. Simbindi

    Homebound versus Bedridden Status among Those with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Jason et al

    https://www.gponline.com/lmcs-vote-remove-home-visits-gp-contract/article/1666629 If it does go this way, what hope will severe ME patients have to obtain consistent care, as they will never even have chance to build a relationship with a GP to establish their needs?
  13. Simbindi

    Homebound versus Bedridden Status among Those with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Jason et al

    Doing a Google search it seems each CCG and each GP practice is setting its own definition of what a 'housebound' patient is, so effectively patients are being left with a postcode lottery and depend on individual clinicians to 'approve' their needs. See for example...
  14. Simbindi

    Covid-19 vaccines and vaccinations

    Also relevant if you are deemed extremely clinically vulnerable and depend on a Personal Assistant/Unpaid carer/partner or family member for your care: https://www.disabilitynewsservice.com/peer-calls-for-disabled-people-to-take-control-over-pa-vaccinations/
  15. Simbindi

    Covid-19 vaccines and vaccinations

    Carers added to Group 6 (England) for priority vaccination: https://www.justintomlinson.com/news/article/unpaid-carers-included-priorty-list-covid-vaccine
  16. Simbindi

    Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al

    So they're using the (subjective) PHQ 15 as the primary outcome measure! https://reference.medscape.com/calculator/460/patient-health-questionnaire-15-phq-15#about-references https://reference.medscape.com/calculator/460/patient-health-questionnaire-15-phq-15
  17. Simbindi

    Ensuring severely affected can be heard

    The researchers presumably thought that using a facilitator who 'knew nothing about ME' would lead to more 'accurate', 'clean' and/or 'objective' data. This is a perfect example of how researchers assumptions can be dangerously wrong when they design their methodologies - you don't get 'cleaner'...
  18. Simbindi

    Ensuring severely affected can be heard

    To be quite frank, the assumption that a researcher can eliminate bias by assuming that the respondent is generating the bias by their approach to answering the questionnaire (and therefore forcing respondents to answer questions in a predefined way), is one of the things that puts me off...
  19. Simbindi

    Ensuring severely affected can be heard

    I gave up on the Action for ME NICE guideline survey for the reasons given by @lunarainbows . It also felt like they were 'putting words into my mouth', I didn't like that at all.
  20. Simbindi

    Ensuring severely affected can be heard

    I also don't answer any survey if I can't read through the whole thing before starting it. Most of my autistic peers are the same in this regard. It's not just the cognitive fatigue, it's the stress of not knowing what to expect as the questions proceed.
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