Useful article, explaining in relatively simple language how they work and how to correctly use them:
https://www.nursingtimes.net/clinical-archive/assessment-skills/the-correct-use-of-pulse-oximetry-in-measuring-oxygen-status-01-03-2002/
This is a serious problem in our mental health rights/legislation/support, where a certain psychiatrist has been playing a lead role. He hasn't just upset the ME community, but lots of other disability groups...
So a lot of people (including professionals) are still unaware that it was CG herself (not her husband) who authored the e-training on CFS/ME for the RCGPs, and that her statements on exercise couldn't possibly be an 'enthusiastic slip of the tongue'.
Did the BBC just randomly choose these 2 people to invite on to their news programme to convey their 'personal experience'? Surely not, they must have been selected as perceived 'medical experts' with personal experience of having had Covid-19. She made an emphatic statement that there is no...
She didn't just demonise our lived experience, she authored an e-learning module for GPs that actively taught her professional colleagues to promote treatment that ME/CFS patients have consistently reported causes significant and sometimes permanent severe harm.
https://www.networks.nhs.uk/editors-blog/supporting-staff-the-emergence-of-2018long-covid2019
Full article can be read via the link given. It is primarily aimed at NHS workers.
Edit: Apparently the Wessely quote is quite old and comes from this article...
Besides not having long Covid, I think that Boris Johnson wanted to exercise more due to his obesity. In this sense I think he is trying to be more of a 'role model' with regarding to following a healthy lifestyle, of which exercise is just one aspect.
Well, she's now disqualified herself from writing, or having any involvement with developing, the new/updated training module on ME/CFS for GPs....
This statement also clearly shows how inappropriate the (only recently removed) RCGP one was.
https://www.gponline.com/lmcs-vote-remove-home-visits-gp-contract/article/1666629
If it does go this way, what hope will severe ME patients have to obtain consistent care, as they will never even have chance to build a relationship with a GP to establish their needs?
Doing a Google search it seems each CCG and each GP practice is setting its own definition of what a 'housebound' patient is, so effectively patients are being left with a postcode lottery and depend on individual clinicians to 'approve' their needs.
See for example...
Also relevant if you are deemed extremely clinically vulnerable and depend on a Personal Assistant/Unpaid carer/partner or family member for your care:
https://www.disabilitynewsservice.com/peer-calls-for-disabled-people-to-take-control-over-pa-vaccinations/
Carers added to Group 6 (England) for priority vaccination:
https://www.justintomlinson.com/news/article/unpaid-carers-included-priorty-list-covid-vaccine
So they're using the (subjective) PHQ 15 as the primary outcome measure!
https://reference.medscape.com/calculator/460/patient-health-questionnaire-15-phq-15#about-references
https://reference.medscape.com/calculator/460/patient-health-questionnaire-15-phq-15
The researchers presumably thought that using a facilitator who 'knew nothing about ME' would lead to more 'accurate', 'clean' and/or 'objective' data. This is a perfect example of how researchers assumptions can be dangerously wrong when they design their methodologies - you don't get 'cleaner'...
To be quite frank, the assumption that a researcher can eliminate bias by assuming that the respondent is generating the bias by their approach to answering the questionnaire (and therefore forcing respondents to answer questions in a predefined way), is one of the things that puts me off...
I gave up on the Action for ME NICE guideline survey for the reasons given by @lunarainbows . It also felt like they were 'putting words into my mouth', I didn't like that at all.
I also don't answer any survey if I can't read through the whole thing before starting it. Most of my autistic peers are the same in this regard. It's not just the cognitive fatigue, it's the stress of not knowing what to expect as the questions proceed.
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