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Abstract The dominant model of disease today is biomedical, and it leaves no room within its framework for the social, psychological, and behavioral dimensions of illness. A biopsychosocial model is proposed that provides a blueprint for research, a framework for teaching, and a design for...

@mariovitali in case you missed this. Idk if it’s of any relevance.

I can’t comment on their methods or the validity of their statements, but could this be usefull for finding a biomarker for ME/CFS? Does anyone know how this compares to the methods of DecodeME and BioQuest?

No, it was not supported if there was a high risk of bias. If the data is garbage, the support is garbage.

No, future trails are not warranted if the treatment was ineffective!

It isn’t really a model, it’s a conceptual framework at best: No empirical basis, just «this is how I believe things are connected» No framework to prove causality It’s an opinion piece, really, and everyone accepted it as truth.

In case it has not been said: the Norwegian MEA has over 7000 members. That’s about 0.13 % of the population. Idk why there are so many members relative the the UK, but my first guess would be that they are very non-BPS-oriented, and they’ve managed to no be tainted by the lobby/mafia.

I’d go as far as describing it as Orwellian:

Crohn’s disease and ulcerative colitis, thanks! Although I thought Crohn’s was far worse than IBS?

Joining this forum has been the most humbling week of my life for this exact reason. I just spoke to my dad. He said «you don’t have the all of the answers». He firmly believes that everyone are a bit correct. So we should listen to everyone. He refuses to believe that most people are...

Does anyone have access? How did they define a «flare»? In my experience IBS was pretty constantly terrible when I struggled with it. I can’t remember going more than a day or two without issues, 7 weeks would have been a dream.

He’s also involved in other research on MUPS: https://www.su.se/english/research/research-projects/emotion-focused-digital-interventions-for-patients-with-medically-unexplained-symptoms Seems like a lost cause. Drank the kool-aid.

I wonder how the field of psych is going to react to biomed causal explanation for common psych phenomena. Will they keep blaming the patient if they don’t respond to therapy? Will they claim that the failure of their treatments is due to the biomed mechanisms - i.e. the treatment isn’t...

Given what we now know about the quality of those studies from NICE (her review is paywalled), I’m a bit concerned about how open-label studies with subjective outcome measurements can classify as «some evidence».

In the protocol, they classify PEM as an adverse event, and I’m not clear on how they define PEM and how they «measured» it. Some sections: Furthermore, this study addresses the phenomenon of post-exercise malaise, which is postulated in the line to the post-COVID syndrome, but for which there...

Thank you for your kind response. I hops so as well, but I fear the worst because it has happened to so many people I know.

Thank you for your patience with all of us, @MelbME. I want to describe a very, very common experience for ME/CFS or LC patients. I’m 29, bedbound and I live with my parents. I’ve had a therapist for three years because being severly ill is hard. She describes my mental health as robust and...

Thank you for taking the time! Great to see that FUNCAP is becoming more if a standard. Can’t expect you to use it before it came out. This is where I end up asking if the DSQ is actually good enough, despite being the best option? The question is probably more like: did you need a scale or...

The paper has a better title, it’s the news outlet that’s using anti-inflammatory. Still not acceptable, though.. Mental Disorders Among Offspring Prenatally Exposed to Systemic Glucocorticoids

To my non-English brain, you «sounded» more certain than what you describe now as speculation. I might also be reading more into things you say because you know so much about so many topics. Apologies for the misunderstanding and thank you for clarifying!