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If the causality goes they way they suggest it might, you’re essentially weighing the risk of one disability against another. Being born preterm is no joke, even just a few weeks. Someone with more knowledge of stats might be able to say something about their analysis. They also explained...

According to these Norwegian neuroopthalmologists, VSS is harmless, but disturbing: The translate function is messed up at the moment - sorry: https://tidsskriftet.no/2024/09/klinisk-oversikt/visuell-sno-forstyrrende-men-ufarlig

I developed VSS in December 24 after barely sleeping for a month. Has not gone away after my sleep improved. The opthalmologist didn’t find anything, I might be heading for some neurological exams if my health allows it.

All 37 participants were included in the effect size analyses, applying intention to treat. The online software Psychometrica (19) was used for all effect size analyses. Welch tests, with SPSS 26 (20), were used for significance testing, comparing pre- and post-treatment to 12-month follow-up...

It seems to me like this is something they should have been able to predict and avoid in the design phase..

I have not read this thread, but I’m just chipping in to say that I experience four reasons to lie down (I have LC, POTS and about to be diganosed with ME:CCC): POTS: Self explanatory Crushing fatigue Feeling of being under many G Dizziness (mistakenly wrote nausea) This has been the case...

They are targeting the insurance companies. They allegedly ran a 10 people pilot. I’ve seen comments from people that declined to participate (for obvious reasons), and from people that took part and experienced severe deterioration. I can’t verify their claims, though. It seems like they...

I don’t know if I should laugh or cry. This is grim.

It’s better than nothing, and the phrasing makes it so that the source of bias is consistent if anything. The underlying problem is lack of knowledge of ME/CFS and therefore both under- and over-use of the diagnosis. Good that they are aware of this. Is depression commonly associated with ME/CFS?

There’s a difference between being able to affect the muscles, and being required for the muscle’s functioning. The former is unquestionable, the latter not so much IMO.

For the most part, yes. But its unfortunate if his(?) project enables harmfull research from others.

I don’t follow the logic of ethics here. Standard does not automatically equal safe, appropriate or ethical. The ethics should be assessed on a case-by-case basis. I can understand that one would argue that non-standard is not ethical because it hasn’t been tested, but that does not make the...

I don’t view the questions as details - they are at the core of that part of the research. Not wanting to over rule the «experts» sounds like an excuse to not check on the work or to not speak up. I know it comes at a personal cost to intervene, but we can’t just accept bad research practices...

@MelbME Have you read all of the questions in BASC-3 as a part of the preparations for this study?

Or can’t afford to get care or to adhere to the treatments - it’s the US after all. And treatments of what exactly?

Too wide definitions? If that’s the case, the activity level might be very important. Nice catch!

6C20 Bodily distress disorder Bodily distress disorder is characterised by the presence of bodily symptoms that are distressing to the individual and excessive attention directed toward the symptoms, which may be manifest by repeated contact with health care providers. If another health...

I’m not a child and I’m correctly diagnosed. My parents would still classify me as severly mentally ill according to this form. You don’t need the last part for this form to make no sense at all, even though it would make this even worse.

What’s with the psych field’s obsession with «excessive» behaviour? How would you even define the threshold for excessive - do you have to define it for every illness? The more I learn about psych, the worse it gets.

What?! They are planning on giving data from the study to the participant’s GP? What’s the purpose? Why and/or how would that benefit the study or the participants? Is this normal? Why is the GP involved at all? I’m very confused.