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  1. Sean

    GAS (Goal Attainment Scaling in Rehabilitation), GAS-light, and gaslighting.

    That, particularly in the context of a poorly understood condition, is nucking futs. :grumpy:
  2. Sean

    Covid-19 vaccination experiences

    Don't know if it has anything to do with COVID vaccination (with my second AZ being on the 10th August). But not long after I got a particularly nasty persistent flu, consisting of sore throat, vicious cough, gunked up lungs and sinuses, and some headaches, but not any temperature rise (been...
  3. Sean

    Article: Will there ever be a test for chronic fatigue syndrome?

    THIS! I am fairly sure that almost every (non-random) finding so far is from the body having to deal with and adapt to the underlying primary pathology, not the primary pathology itself. Which is fine for clues, including for possible (non-curative) treatments. But they are not explanatory.
  4. Sean

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    The morphing of GET into pacing, and vice-versa, by the BPS club has been going on for some time.
  5. Sean

    GAS (Goal Attainment Scaling in Rehabilitation), GAS-light, and gaslighting.

    Either these people are genuinely unaware of what they are doing, in which case they are grossly incompetent. Or they are just openly laughing in our faces, in which case they are psychopaths. Either way they should not be in these jobs.
  6. Sean

    The Atlantic: Long Covid is everyone's problem, 2021, Ed Yong

    One of the greatest lost opportunities in modern medicine. We could have been 30, even 50 years ahead by now, on this issue. But we are not. That situation did not come about by accident. :grumpy::grumpy::grumpy:
  7. Sean

    Guardian Article on NICE pause

    They were researching career advancement.
  8. Sean

    Article in The Scientist: Mechanisms of Long COVID Remain Unknown but Data Are Rolling In

    Just look at the number of studies, their sample sizes, time spans, hard physiological basis, and how quickly they got up and running. Compare and contrast with the situation for us over the last 60 years. I mean, I am very happy that LC is getting serious attention, because it should and is...
  9. Sean

    2021: Communications between NICE and the S4ME management committee about the paused NICE ME/CFS guideline

    What everybody else has already said. Great work. :thumbup::):hug:
  10. Sean

    A general thread on the PACE trial!

    The Actiwatch is a compact, light weight,... Which I believe is the opposite of "cumbersome".
  11. Sean

    From harm to help - promoting an evidence based shift in understanding of ME/CFS, presentation to RNZCGP conference 2021, Cathy Stephenson

    Only looked at the PDF file, but it is excellent. Thanks to those who produced it. :thumbup::) Just one suggestion, on the last page (31): CBT is supportive but not curative. I would prefer: CBT can be supportive but not curative.
  12. Sean

    BPS attempts at psychologizing Long Covid

    The cruelty bit for me is that it is coming from the very profession supposed to relieve suffering. This has always enraged me. It is one thing for an individual or small group within a profession to misbehave. But for virtually the whole profession to stand by and do nothing about it and...
  13. Sean

    BPS attempts at psychologizing Long Covid

    You clearly need some Equipoise Socks™.
  14. Sean

    Guardian Article on NICE pause

    @Adrian Far as I know, there is literally nothing in the PACE data (or in FINE, GETSET, etc) that even justifies further research into the psycho-behavioural approach, let alone its application in the clinic and medico-legal settings. If PACE, et al, show anything it is that this is not a...
  15. Sean

    Guardian Article on NICE pause

    Patients who get better tended not to be as vocal as those who had had bad experiences, she said. That would be the patients "who get better", who for some mysterious reason, also failed to show up in the results of your own "definitive" study?
  16. Sean

    Guardian Article on NICE pause

    Not "medical research bodies". Furthermore, that situation is due largely to the likes of Sharpe and Chalder for two reasons: First, by using such broad inclusive criteria in their studies leading to the mixing of several different patient groups. Second, by discouraging and even blocking...
  17. Sean

    Guardian Article on NICE pause

    That would be your criteria, Prof, which wasn't even the best then, let alone now. Did you inform Natalie Grover of that relevant conflict of interest? Well, you claimed it was the patient group (AfME) involved in that trial that asked for that, but then you told a different story to the trial...
  18. Sean

    BPS attempts at psychologizing Long Covid

    There is no cruelty quite like medical cruelty.
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