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  1. Sean

    [Blog] Beyond the NICE guideline: MEComms© and the case for a public inquiry

    I certainly don't think it is going to be plain sailing. Nothing about the politics of ME is. Quite the contrary, short of a major breakthrough in the biomedical side, this is potentially the biggest threat to our opponents, so I have no doubt they will move heaven and earth to prevent an...
  2. Sean

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Or one can relate to standard criteria for mitigation measures. We did the latter. Which is the whole problem. Standards in this kind of research are in the sewer.
  3. Sean

    [Blog] Beyond the NICE guideline: MEComms© and the case for a public inquiry

    This. Including the critical issue of alleged 'harassment and threats' claim. Rip the covers off it and see what is really behind it. I think they go hand-in-hand.
  4. Sean

    Reversals in psychology, 2020, blog by argmin gravitas

    This will always be their fallback position: It only works if the patient wants to get better. The big plus of this position being, of course, that it is completely unfalsifiable. It is impossible for a patient to prove they do want to get better and are trying hard enough.
  5. Sean

    Neuroimaging in Functional Neurological Disorder: State of the Field and Research Agenda, 2021, Perez, Carson, Edwards, Hallet, Stone et al

    Not least of which is that there is a healthy normal profile and any deviation from it is pathological, and the more deviant the more pathological, and the more urgent and forceful the 'correction' required. But without deviation from the statistical normal there is no raw material for...
  6. Sean

    Management of functional communication, swallowing, cough & related disorders: consensus recommendations for speech & language therapy, 2021, Baker

    Interesting how the BPS school dismiss any suggestion that there is any such thing as a purely biological condition (or it is vanishingly rare), and insist that all medical conditions involve a psychosocial component. While also insisting there is such thing as a purely psychosocial condition...
  7. Sean

    Neuroimaging in Functional Neurological Disorder: State of the Field and Research Agenda, 2021, Perez, Carson, Edwards, Hallet, Stone et al

    Makes one wonder why they bother with all the trouble and heartache of doing clinical studies. Unless they just regard them as marketing exercises.
  8. Sean

    Neuroimaging in Functional Neurological Disorder: State of the Field and Research Agenda, 2021, Perez, Carson, Edwards, Hallet, Stone et al

    Yes, their primary tactic now is to just repeatedly assert FND/MUS as fact. No correspondence shall be entered into.
  9. Sean

    Management of functional communication, swallowing, cough & related disorders: consensus recommendations for speech & language therapy, 2021, Baker

    Don't you just love the certainty. Maybe because there is no practical management approach to a made up condition?
  10. Sean

    Influence of Priming on Patient-Reported Outcome Measures: A Randomized Controlled Trial, 2016, Claessen et al.

    Inflating a known and non-therapeutic methodological bias is not a legitimate therapy.
  11. Sean

    Quality of life in functional movement disorders is as altered as in organic movement disorders, Gendre et al., 2018

    FMD patients reported more often sexual abuse than dystonia (28,6% vs 4.8%; p = .13) and Parkinson patients (23.3% vs 0.0%; p = .02). As determined by prospective or retrospective studies?
  12. Sean

    The biology of coronavirus COVID-19 - including research and treatments

    According to Wikipedia the Delta variant seems to be around 50-60% more transmissible than the Alpha variant. Which is not good. However, it also seems to be less fatal, and a double dose of either Pfizer or AZ vaccines are over 90% effective at preventing hospitalisation.
  13. Sean

    The biology of coronavirus COVID-19 - including research and treatments

    In fairness, it is because we don't want it to turn into the UK and USA, which it easily could seeing as our outbreak is the Delta variant.
  14. Sean

    UK: Physios for ME

    Either 1. There is no (primary) physiological pathology and hence no biomarkers. It's psycho-behavioural all the way down. 2. There is a (primary) physiological pathology but we are not looking in the right place and right way. Option 2 can be further broken down into four possibilities, the...
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