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    MElivet - Blog posts by Nina E. Steinkopf

    There is a risk of misunderstanding the purpose of academic publication. It is not the dissemination of the results of properly conducted scientific enquiry. It is making money for publishers.
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    London Centre for Functional Medicine: Chronic fatigue

    I suppose that the name does at least distinguish them from all the centres of disfunctional medicine, which seem to proliferate. We need a duck emoji.
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    World ME Alliance, was previously IAFME: International Alliance for ME

    Is "not endorsing" a sufficient sign of disapprobation? It is the sort of thing one says whilst sitting securely on a fence.
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    The Madness of Medically Unexplained Symptoms, 2021, Jenny van der Palen

    You know how Roman emperors used to have a slave to utter the words "memento mori" on appropriate occasions. I wonder whether it would be possible to train ducks to sit on the shoulders of some psychiatrists and quietly say... well, say what it is that ducks say.
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    BMJ: Acting on historically offensive content in BMJ’s archive, 2022

    They should try rereading their 1970 editoral on McEvedy and Beard. But on no account should it be lost to the record.
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    The Guardian: I gave up hope of a cure for my chronic condition. And it’s made me happier than ever before

    With those who write for a living one can never be sure of the extent to which their writings reflect their beliefs. Incidentally, is cessation of expectation the same as giving up hope?
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    Molecular Mechanisms of Neuroinflammation in ME/CFS and Long COVID to Sustain Disease and Promote Relapses, 2022, Tate et al.

    That is true but it poses an intersting dilemma. What word could be used to describe the body excluding the brain and any parts of the central nervous system considered relevant. We may just have to accept this usage.
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    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Shouldn't a joke be funny? Funny ha-ha, that is. I suppose it qualifies as funny peculiar.
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    NHS Northumberland Tyne and Wear MUS

    The document expressly cites an NHS guideline from 2013. It can be assumed that the document was produced between 2013 and 2016. It is interesting that they cite Katon et al 1984 and 1991. The 1984 paper was Depression: relationship to somatization and chronic medical illness. It is just a...
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    NHS Northumberland Tyne and Wear MUS

    That seems to have been uploaded in 2016, so it is not the ancient history that it would appear to be, although iIcannot see a date of publication.It does seem to get something right, its pretty little theme Shining a light for the future . There is no more appropriate expression than "shine a...
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    Neuropsychiatric sequelae of long COVID-19: Pilot results from the COVID-19 neurological and molecular prospective cohort study, 2022, Chen et al

    As the saying goes, if you cannot measure what is important , make important what you can measure.
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    Striking the balance with epistemic injustice in healthcare: the case of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis - Eleanor Byrne - Mar 2020

    Love the schematic representations of ill people (presumably). They are so apt and not at all stereotypical or stigmatising. "Stigma" seems to be becoming something of a cliche. It will soon be easy to diagnose ME. Just hold your hands up for inspection.
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    The Expectation Effect - David Robson BBC

    Don't be like that. It is well up to the standard to be expected of the BBC.
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    UK - NHS England online tool and clinics for long Covid.

    Should we be surprised at the attitude of the NHS ,given what we know of the views of the NHS Clinical Director for Mental Health's about the new NICE guideline? Was it not he who suggested that it might be "pulled altogether"?
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    Functional Neurological Disorders in the medical education: An urgent need to fill the gaps, 2022, de Liège et al

    So, is it a disorder or a disease. When we wanted ME to be taken seriously it was said that it is not a disease, but an illness. It seems that such conditions can now be called disease when authors feel so inclined.
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    United Kingdom: Science Media Centre (including Fiona Fox)

    According to Wiki, Philip Ball has for twenty years been an editor of Nature. In that case one would hope for something rather more lucid than that first sentence.
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    The serotonin theory of depression: a systematic umbrella review of the evidence, Moncrieff et al, 2022

    Isn't that the whole point of the biopsychosocial model? It is nothing but a series of "category errors" which includes everything, excludes nothing, and makes differentiation impossible. it was not an accident that Wesssely was stating in 1989, or whenever it was, that aetiology is not...
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