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    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    The question is, what measures should be taken to ensure continuity of support? It cannot be long until the next cabinet reshuffle. There may be some in higher ranking posts who may not keep them. The civil service will probably keep on doing what it has always done, until someone else is in...
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    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    If, as you say, they kept quoting PACE it must be assumed that what they meant was CBT and GET as defined within the PACE protocols. If they meant something other than that they should have defined their terms, and stated the evidence upon which they relied. That could clearly not have been PACE...
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    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    It's the formative years which are the important ones. People seem to find it hard to understand the shock to the system experienced in the years from 1989( EDIT for those in the UK, 1987 more generally.) Here, suddenly, were a bunch of parvenus of whom no-one had heard, who seemed to have the...
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    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    I don't disagree with that. There is however a difficulty. When suggestions are made that the name CFS should be rendered obsolete we are always reminded that the natural sensibilities of those already diagnosed with CFS should be respected. and taken into account. Quite rightly so. That applies...
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    British Medical Association: "Known unknowns, and as yet medically unexplained diseases" by Dr David Strain

    I know that but the name was only applied retrospectively. In the Alaska outbreak the name was applied in the original paper, and it was only about the second or third case to do so.
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    British Medical Association: "Known unknowns, and as yet medically unexplained diseases" by Dr David Strain

    I know that ,but they did not come up with a case definition until 1987 or 88 and there is no reason for a UK based doctor to believe that Tahoe was of any greater significance than other outbreaks. There are even those who think the epidemic outbreaks are not entirely relevant anyway. That is...
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    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    Surely by this time he had given up on believing in, or looking for, mysterious illnesses. He thought it was all just illness behaviour within the Imboden, Canter, Cluff model.
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    British Medical Association: "Known unknowns, and as yet medically unexplained diseases" by Dr David Strain

    That seems like a reasonable explanation, but I am not sure why one would rely on the Tahoe date as the commencing date for a definition of ME. It cannot even be that nothing happens in the world until it has happened in America. One of the first sets of cases described as ME was in Alaska in...
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    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    But it is self-damning isn't it? It doesn't stand up to any sort of analytical scrutiny. It purports to say something useful but appears entirely devoid of content.
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    British Medical Association: "Known unknowns, and as yet medically unexplained diseases" by Dr David Strain

    I suppose someone may have started using the term before the meeting in spring 1987 ,at which the preliminaries were discussed and agreed, and there was then about a year of back and forth agreeing the definition for the paper which was published in about March 1988. So that seems unlikely. I...
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    British Medical Association: "Known unknowns, and as yet medically unexplained diseases" by Dr David Strain

    How does he get a date of 1984? Is it something to do with Orwell?
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    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    I apologise for returning to an issue arising inthe Straus letter. I am not unmindful of the fact that it may be considered boring. Life can be. I am not sure that anyone has picked up on the fact that the reference to "shrill pressures to justify an entity of dubious validity such as CFIDS" is...
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    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    The letter from Straus is, of course, revealing, but it shows only reasons for the retention of the name rather than its original selection. For that one would have to have information from 1987/88. That information clearly shows the dismissal of ME. It is interesting to note that it was not ME...
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    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    What is the evidence for that? "Post viral fatigue syndrome" was probably thought up as a better name. The evidence from Straus and Eisenberg is that ME was dismissed as being hysterical in nature, as proved by McEvedy and Beard
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    Normal muscle strength and fatiguability in patients with effort syndromes, 1988, Stokes at al

    It is doing bad science if you disseminate widely invalid inferences which you draw from your your results.
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    Government and Insurance companies - establishing the BPS model

    I suspect that you are thinking of Peter Bottomley. His wife Virginia Bottomley was Secretary of State for Health from 1992 to 1995, having formerly been a Minister of State at the department from 1989. She had been a mental health social worker. I believe that it used to be recorded that she...
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    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    It may be a mistake, but it isn't the end of the world. The important thing is that it is something other than a peer-reviewed paper. Where would you get the peer reviewers?
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    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    Perhaps we should be pleased to see the intervention of Kunst Projects APVIOLEXT - From apathy to violent extremism: Motivational foundations of political engagement Webimmunization. How can online social networks create collective resilience against misinformation Jonas R. Kunst - Department...
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    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    I see that Horton is an Honorary Professor of University of Oslo and has an Honorary Doctorate from Tromso. The Norwegian ties are quite close.
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