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I think it's a big difference. The things listed are just indicators of overall differences in capacity. Of course it's a continuum, but my life is very different in level 4 than when I was in level 3.

You're right. Though I guess they might say we can email to ask to see it... That about sums it up. They could have designed this particular questionnaire with sections to be answered by people with different severity levels. They say that will be a next step. Why? They ask at the beginning...

Given that the 2 lead researchers are physios, perhaps the Chartered Society of Physiotherapy No idea really. I hope someone reading this who can explain all the things participants are asked to agree to will explain why they are needed.

It's not you, it's the technology. The web address needs to include www for it to recognise that you are logged in. I'll amend it. https://www.s4me.info/threads/me-chronic-illness-podcast-post-exertional-mayonnaise.33695/

I don't think that's a serious problem. It might be for some social media surveys perhaps, but I can't imagine the thousand or so participants they have had for previous questionnaires including more than one or two rogue participants.

A quick note in case Sarah Tyson is reading this: I assume this is an error: 79. Take part in gentle recreational exercise e.g. walking, yoga, dancing, golf, cycling, swimming 81. Take part in more demanding recreational exercise e.g. dancing, golf, cycling, swimming

I don't think we have evidence to support that. For example, most people who get ME like symptoms following glandular fever recover within a year, from my memory of Leonard Jason's research. Most of the early recoverers probably never get an ME diagnosis, even if they fit ME/CFS diagnostic criteria.

I tried clicking on the link just now and got the message that the link had expired. I confess I didn't bother to try the link before I did the questionnaire. I assumed I'd already seen it for previous questionnaires.

It is ridiculously long. And I kept forgetting the instruction at the beginning of each section so had to go back and redo the first section. I was helped by the last section being all questions about going out, and since I don't go out it was easier, once I'd settled on which of 3 ambiguous...