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I think this it relevant to men's and women's reporting of pain:https://www.theguardian.com/commentisfree/2024/oct/14/men-women-pain-school-period Guardian article includes use of menstrual pain simulators to teach men about the level of pain many women endure monthly. Quote: To men who still...

I doubt there will ever be total agreement over definition. Personally, for most of my years with mild to moderate ME/CFS, I would not have fitted this definition, because I didn't have significant cognitive problems except when in PEM. But I do have OI and pain as key parts of my ME/CFS along...

That's how I read it.

I bought that book with great hope that it would be really good. It was awful. Muddled and badly written.

For the UK, key names that should come up in the story are Simon Wessely, Peter White, Michael Sharpe, Trudie Chalder, Esther Crawley. Also, in relation to denial of disabilty support for pwME, Waddell and Aylward. Links with the insurance industry, the Science Media Centre, The Oxford...

Film: The Tangled Story of ME/CFS From @Valerie Eliot Smith's blog: https://valerieeliotsmith.com/category/the-secret-files/ if you want to dig further about some secret files.

The Rise and Fall of the Psychosomatic Approach to Medically Unexplained Symptoms, Myalgic Encephalomyelitis and Chronic Fatigue Syndrome by David Marks Article | Thread Blog series: "Orthodoxy on trial: the pathogenesis of a diagnosis" by David Black

That looks like a very good motion to me. I can't see any reason why the current trustees would reject it. I wonder whether it's possible for the proposers to call an extraordinary general meeting to put it forward, or alternatively complain to the Charity Commission.

I prefer to call it psychobehavioural. There's nothing biological about these people's beliefs. It's all about blame based on our allegedly wrong thoughts and behaviours.

Asking about bouncing back from stress without specifying what sort of stress is ridiculous. The stress I think of could range from dropping a bowl of soup on the floor and having to use energy I don't have clearing it up, to someone close to me dying. The answers would be very different, and...

I think the perspective probably looks different on each side of the Atlantic. BPS is still very powerful in parts of Europe, and they're not giving up, digging their heels in with Long Covid as well as ME. There has been far less bio research in Europe than in the USA, and at least some of it...

Some posts have been moved to: Minirico Mental Intervention and Nicotineamide Riboside Supplementation in Long Covid

But surely that's the point. He's not the same as the average victim of the LP cult, for whom I have huge sympathy. He's got 40+ years experience as a doctor, professor of medicine, and expert in clinical trials. However persuasive his trainer is, he has agency and knowledge. He presumably...

He can't help himself. The tone of that article is so complacent, patronising and flippant. What about serious complaints, like the S4ME committee one about Sarah Tyson's appalling behaviour towards our members? That was dismissed with 'noted' followed by full support for Tyson. No I won't be...

Thanks, well done. Surely that means their conclusion is wrong too. They can't claim real effect when it didn't even reach statistical significance.

The second one by Peter Hall et al. which is mainly promoting electrical brain stimulation methods, also makes a good point against exercise therapies:

If anyone, including Paul Garner, is reading this thread and wants to know more about LP, its methods, and the 'brainwashing' aspects, and harm it can do, I suggest reading these stories written by people who underwent LP. https://lp-fortellinger.no/en/lp-stories/ If you don't have the energy to...

There are much better surveys showing GET leads to significant worsening even when done by so called experts.

I have just replaced my failing fitbit with one that does HRV. In the first week my HRV is consistently scarily low (mid teens), but I've decided to put that down to old age and not worry about it.

Garner has backed himself into a corner by being so frequently public in his pronouncements on the media and social media and by adding himself as a signatory on BPS so called research and reviews. He has made it his retirement project, with a new set of friends and colleagues, including...