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At the end of paragraph 2, you say: should be extrapolated... i think you mean: should not be extrapolated ..

We can link to anything that is publicly available. And quote short extracts, but not copy whole documents.

This is our thread on the survey. Note that there were serious criticisms on that thread about the way the survey was conducted. Survey: "TREAT ME" (ME/CFS & Long Covid Treatment Survey), by 'LongCovidPharmD'

Given that this is a social media generated patient survey, and the outcomes are self reported, and the numbers who had tried each treatment listed vary enormously from a few dozen to thousands, there's not much that can be concluded about any individual treatment, except graded exercise therapy...

Also they seem to be saying pacing needs to lead to improvement to be classed as effective. But pacing has only ever been claimed to be a management strategy aimed at avoiding deterioration. Just like some drug treatments for incurable diseases, avoiding or delaying deterioration is a win when...

These appear to be contradictory. I haven't read the whole paper.

There is also evidence some have POTS without hypotension.

I can't see it as I've blocked her. Can you copy the post here, please?

But surely that's the point. GET suppposedly enabled some people to walk a little further in a 6 minute walk test, but if they crash just as badly the next day, their overall function hasn't improved at all. GET was based on increasing walking in a single short walking task each day. The...

Totally agree with this. Very well put.

Excellent demolition job by Brian Hughes.

I think that's possible by hyperventilating.

Other threads with articles by David Black: Blog series: "Orthodoxy on trial: the pathogenesis of a diagnosis" by David Black David J Black: Is anyone listening? Does anyone care?

Part 1: David J Black: The great health expenditure catastrophe – diagnosing a failed panacea Extract from the article: The crystallisation of Britain’s vendetta against the suffering was the notorious Malingering and Illness Deception conference held at Woodstock, Oxford in 2001. This was...

A very worthwhile project. The stories are clearly told, and the pictures show real situations, not posed models. Well done to all.

My 2 trips to Australia to visit family did nothing for my ME/CFS. In fact I suspect the exertion of the second trip was a contributing factor to the long term worsening that led to ill health retirement.

Fair point. I agree it's possible there's a subgroup.

I doubt that this thing about not catching infections is true. I suspect a lot of it is that we are out and about less. I'm pretty sure, though it's a long time ago, that I got the usual colds etc while I was still teaching and had school aged kids. Since being housebound I'm rarely if ever...

It asked me for email address and password.

If someone says, I rested for x years, then decided one day to test myself and found I could do more, there is no way of knowing whether that decision was influenced by the person's symptoms, even if subtly. So it's quite possible they had just experienced a spontaneous improvement or recovery...