Search results

Have listened to the bit with TC transcript below. She talks the usual twaddle. Interesting that she mentions the research of ACT with muscular dystrophy proving that you don't have to 'have looked at the data' [before any potential change in protocol, outcome switching etc] to know how the...

https://www.bbc.co.uk/programmes/m000bmyf not listened to this yet

https://valliantnews.com/2019/12/08/inside-the-controversial-therapy-for-chronic-fatigue-syndrome-that-some-patients-call-a-cult/ looks like a rehash/copy of https://www.buzzfeed.com/tomchivers/inside-the-controversial-therapy-for-chronic-fatigue

while they are trying to work out what 'recovery' is, maybe they should also investigate what constitutes 'harm'(?)

My mother had recurrent abdominal pain; was in A and E in the morning of the day she died from a AAA (aortic aneurysm) having been sent home with painkillers.

seem to remember Dr Bateman in her recent presentation about activity and exercise intolerance, here https://www.s4me.info/threads/video-upright-activity-and-exercise-intolerance-critical-concepts-in-the-evaluation-of-chronic-fatigue-dr-lucinda-bateman-2019.11960/ when talking about 2 day...

Sentinel Healthcare lands at PSP with health training hub boost for Devon https://www.theplymouthdaily.co.uk/news/business-daily/sentinel-healthcare-lands-psp-health-training-hub-boost-devon (anyone have any more info/experience of this service?)

full article: https://snowbrains.com/oliver-vaughan-jones-has-big-plans-for-improvement-to-the-adaptive-ski-industry/

gets mentioned in this article Christchurch chronic fatigue syndrome sufferer told it was all in her head (Dec 2019) https://www.stuff.co.nz/national/health/117957344/christchurch-chronic-fatigue-sufferer-told-it-was-all-in-her-head (still too many references to 'chronic fatigue' :banghead:)

full paper here https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0225995

to 'outsiders' I do tend to emphasise that I have ME and not CFS and briefly explain where the name CFS came from and hence why it is not appropriate. But this is really to try and re-educate people about the nature of the illness and correct the vaste amount of misinformation put out by the BPS...

thought this might be of interest https://www.tandfonline.com/doi/full/10.1080/14737159.2020.1699064 full paper behind paywall, no sci-hub yet.

https://www.edinburghlive.co.uk/news/uk-world-news/tesco-sings-up-sunflower-lanyard-17367389 (could be good but not sure it will be that discreet if everyone knows what it stands for)

https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-019-02153-6 eta: can someone explain the conclusions

response from Dr Mike Scott cbt watch BBC Chooses To Ignore Talking Therapies 10% Recovery Rate http://www.cbtwatch.com/bbc-chooses-to-ignore-talking-therapies-10-recovery-rate/ eta:

NIH ME/CFS Advocacy Call October 17, 2019

full blog here https://elemental.medium.com/diagnosis-is-a-process-not-an-event-db1e6ae2ac35

from email

https://link.springer.com/article/10.1186/s13030-019-0171-2 eta: surprisingly 'tailored' to ME symptoms but uses CFQ