Search results

I'm not sure - it just makes me sad the limitations of how these trials might be read. A 14% increase in exercise tolerance over 40weeks, with an 11% interim indicates to me that (like a few other things) longer timescales, as well as, the improvement as it is is well-worth having. First 14%...

Don't apologise, I don't think that you can assume anything is uniquely one or the other - and even if it were those who chose to publish it as it is (or edited it to be that) with have done so because it fit their own needs so politics will be heavily involved/are not separable. "I am very...

Anyone smelling the selling of ACT just replacing CBT?

I find it unforgivable how seemingly easy it would have been for the NHS to have tried these out as relevant and sensible and to have collected logical and non-partisan case studies and data for each of these. By now we would have so many suggestions of what to go on Instead everyone's truth...

I get exactly the same thing and always have for many years. My calves through to under shin bones have always been the most regular for the totally inflamed muscle, shoulders/neck potentially too (although that could be other things, where the calves was so distinctive when it first started as...

It has suddenly struck me that one upshot of not providing clarity regarding the service is that people 'sign-up/go along' to find out it is something that would not be useful. 1. Does this mean that the service 'gets paid' even if people only go for one appointment? EDIT* and by this I mean...

I'm incredibly sensitive to anything not soft enough and it has to be cotton (temperature). This is to the point that I've had sheets in the past that even when they were ironed would leave my legs red from them moving over them during the night. I used to buy the highest count House of Fraser...

TMJ seems a random one to throw in there for them. What do the dentists that often deal with that think of it? But yes this comes across as poisonous diatribe from someone with a certain attitude towards certain types of people who has an axe to grind trying to justify it all. All very...

Agreed. If there was any way of making it possible (and I think the ambiguity of individual's different personal threshold levels being unconfirmed would be an issue) this is one where it would be useful to have a 'what have you almost certainly got' (with the only catch to that being that it...

The issue actually is when basic sense and science contradict their pet nonsense they write some pseudophilosophy-code to claim it doesn't, or just order people to stop asking questions on things that could cause such 'awkwardness' and treat people like objects (by using personality research and...

It has turned into a political gadget (there is a better word I can't reach right now), if it wasn't always intended that way. Seems that dragging up poor evidence as 'something to cite' and banging on about nonsense personality ideas based on lame correlations as if they are fact without...

I've cut down to just this quote because I LOVE it as a point to be made. You've also made me think - why is an impact section (given it is now the one most commonly read and picked up by marketers, journos etc, and has its own weighting re: funding and credit in the workplace) given free-rein...

Yes. There was another thread somewhere that I was noting the issue seems to be a lack of education in the sector with regards research. We had drilled into us things like phenomenology vs grounded theory and ontology vs epistemology. These guys think 'they know' when just as 'the message is the...

Could that basically mean a test that is less damaging, and certainly more safe esp for those who are mild, is actually possible from this? I say mild because imagine how powerful it would be for those who (and many have been there) do the pushing through etc. I know workwell use the example in...

Two big reasons: 1. the CFS description was such a weird hypochondria mixed with 'exercise avoidance anxiety' along with actually prescribed in the guidelines orders to 'not investigate' I'd suspect many think they have something else that simply has never been 'gotten to the bottom of'. 2. the...

Ohhh so naughty. And sinister having the biopsychosocial screenshot crowbarred in so many times. It feels like an obvious PR to try and cover for 'why are we still offering the same old thing, and how can we rebrand it as 'no, it's not that old thing''. Just try and come across like gentle...

I think that all this terminology needs clarifying but in a 'process list' type format (diagram or something). We've got PEM, and rolling PEM (which is effectively the state in which most with ME probably have to live in), and those in rolling PEM can have 'PEM' on top of that. Then there is...

Worth a read of this report. I found it so frustrating. Basically confirms the same crux of the issue. Forward ME have got a big job because it looks like denial re: BPS approach whilst claiming they don't see the illness as psychological lurks large in this report. And so difficult to post a...

United Kingdom: ME Association RCGP Meeting – General Practice and the new NICE guideline on ME/CFS Report on a meeting held on Thursday 16th June between Forward-ME (FME) and the Royal College of General Practitioners (RCGP) to discuss implementation of the new NICE guideline on ME/CFS in...

"ACTIVATE adopts a primarily hands off approach to treatment aimed at motivating and educating service users to manage their condition more effectively and utilises both individual and group-based interventions" There isn't an emoticon for my shock at this. I can't think of anything more...