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Thank you @Dx Revision Watch for this info.

Did they control for the colours of the clothes participants wore during the trial period, what they watched on TV, how the rooms they frequent were decorated, etc? Did they do darkness controls? Perhaps they should monitor the auras of everyone the subjects came into contact with, including the...

Great news!

I suspect we will see damage limitation from the BSP cabal: saying they never denied there was a physical illness, pedalling false sympathy for the severe end of ME but repeating the importance of hope and that for the mild and moderate activity management and psychological support is vital to...

Just watched the piece (half way through the programme), it is very good and thanks to Clare Norton and Sean O’Neill who gave very compelling contributions. The focus of the piece was the failure of much of the NHS to take this biomedical condition seriously, the harm arising from inappropriate...

If the psychiatric disorders were initially measured by questionnaires that includes questions about fatigue and general physical activity how likely is the presence of fatigue from non psychological causes going to inflate the figures for psychiatric disorders? Did the psychiatric interviews...

Definitely a more apposite literary reference.

To be fair I am not sure that the original developers of CBT envisaged it as being marketed to cure biological illnesses à la PACE. CBT like mindfulness may have some specific uses and it’s explosion to a miraculous cure all was not a necessary consequence of its development.

How many people will die from undiagnosed treatable conditions if following this credo.

Ever more Kafkaesque.

Yes!

Yes, although CBT was initially seen as neutral about the origins or causes of psychological distress, rather a belief free way to modify thought patterns and behaviour, it does not seem to have thought objectively about what the targets of that change should be. Though it was established as an...

I have never had enough support to find a base line, unless someone could provide me with a cook house keeper, a valet, a chauffeur, a gardener and then a property manager to deal with all the staff. In general at what ever level of impairment life will interfere with any attempt to establish...

Experimental psychology well understood fifty years ago that open label trials with subjective outcome measures were inherently unreliable, and as I have pointed before the main proponents of the BPS approach to ME from Wessely to White to Chalder to Crawley are not research psychologists but...

I don’t think we have enough evidence to assert this. I accept ME is a fuzzy set with blurring at the fringes and there is high levels of variability between different patients. However there is also high levels of variation within individuals; over the thirty years of my ME my condition has...

I am somewhat embarrassed to admit that I just use microwave rice that requires no preparation or washing up, other than the plate it is eaten off. I have not tried serving it to anyone else, but I find the brand I get (Tilda) surprisingly palatable.

It is important to remember the emotion attached to diagnostic labels, especially when those labels are used very differently by different people. We only need to think about the heated discussions on social media that we saw and occasionally still see in the ME versus CFS debate. Often such...

I read ‘rice cookers’ as ‘rice crackers’ which makes this thread very surreal.

I second this. Such an important issue given the repeated medical abuse of people with very severe ME involving eating/feeding issues. Coroners are in a position to issue clear statements of what has happened and give advise on what needs to be done, including referral of the matter to the...

An important article, but will [it] gain enough traction to influence services and support for people with Long Covid, particularly those that meet the diagnostic criteria for ME/CFS? [edited to correct typo]