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However if some part of the NHS in the Midlands is commissioning the Chrysalis Effect Team to provide clinical intervention with patients with ME/CFS this noncompliance with the current NICE guidelines needs to be addressed at both a local level and nationally.

I guess they may be thinking that, though ‘chronic fatigue’ does not necessitate ME/CFS, ME/CFS does imply the presence of ongoing ‘chronic fatigue’. That they make this distinction is a step forward, but by the same logic, as @Andy says, they should then also include in their ‘chronic fatigue...

I agree that we need to clarify what is meant by unrefreshing sleep. I always understood it to be different to disrupted sleep patterns, rather I understood it to be even when I have a good seven or eight hours sleep I wake up feeling worse than when I went to bed. On such mornings I may need...

You missed out that the illness is also probably an excuse to do nothing. So it is due both to people wanting to do too much and also wanting not to do anything.

Thank you.

Another excellent article.

@Lou B Lou thank you for finding this. However I think you have a typo in this quote which should read ‘I work from home 1 day a week to help with stress levels … ‘. Which presumably means she works five days a week, four of those days in the ‘office’.

I have seen over fifteen doctors in the 30 year course of my ME and only one admitted I was unlikely to recover or be able to work again, a neurologist with a declared special interest in ME I saw privately when in pursuit of ill health retirement. Most UK doctors I have seen presented...

The latest article “The British Association of Clinicians in ME/CFS (BACME) doesn't understand post-exertional malaise. - They think it's a type of fatigue.” See https://mecfs.substack.com/p/the-british-association-of-clinicians is worth having a look at.

Can it be signed by non Dutch residents?

I remember when I started work over 40 years ago how doctors hated telling people they had MND (ALS) because there was no treatment, which resulted in false hope and people failing to plan for their inevitable deterioration. This dramatically reduced their quality of life as things were never in...

The only UK figures I have seen recently are related to hospital admissions, but then only for relatively small geographical areas, not for the country as a whole. I suspect there is a government desire not to present accurate Covid figures here, because the politicians want the country to...

@Mij, I think you had problems with the cut and paste. Here are the full five reasons: During Due Diligence (the process by which the investors corroborate the facts shared with them in the Den) facts presented by pitchers don’t hold up (e.g. the pitcher said he had a patent, but really all he...

I don’t understand why they are so excited as any company retailing this product, given as soon as you invest in marketing any number of already established companies could simply piggyback and retail the product at a fraction of the cost. This is not a sustainable business model as the more...

The must be some ambiguity about whether the BBC is endorsing the product in a legal sense as they would not have taken the show off line, presumably consulting lawyers before adding their disclaimer and then putting it back on line. If the BBC are unambiguously neutral about the product, why...

It is interesting that there is little discussion about the energy costs of novel or even less recent events. I can now fairly easily do an online grocery order but struggle to do simpler on line purchases from websites I am not familiar with, or I don’t usually need to use a walking stick...

In 2000 I did manage to find a doctor, a neurologist in private practice with a special interest in ME, who said I would not recover and would not work again, though this was six years into my ME when I was looking to take ill health retirement which required I had a condition that was such that...

I don’t regularly watch Dragon’s Den, but in the past I has seen people pitching for investment rejected because their retailing of items without any exclusivity deals meant they did not have a long term sustainable business model. The Dragons previously said why invest when anybody else could...

Interesting to know that pregnancy and child birth are then also psychogenic, because more women than men get pregnant.

Good to see a surge in signing and some new comments including French and German responses. Thank you to those reconnecting with international groups.