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I suspect the norm in ME is for people to do as much as they are able at that point of their illness, and if their health does improve at all they do more. Unfortunately as ever the BPS researchers/clinicians confuse association with causation and arbitrarily decide on the direction of any...

Am I making this up or did the previous Nice Guidelines also recommend a care plan with annual reviews? Having said that in 30 years no medical professional has suggested this for me.

Great news. It is truly heartening to have seen the wide spread support for the patient view point and largely accurate reporting in all the main UK newspapers rather than just publications like the Canary which has regularly reported accurately on ME issues. All though it often feels like with...

One of the many Medical Advisors to this local group. It has more medical advisors than any of the national ME groups. I have not done the arithmetic but I suspect as many advisors as all the national groups added together. One wonders how many of the BPS researchers in the past that have cited...

Dr Miller is desperately trying to still push exercise and CBT, whilst not contradicting the new NICE guidelines. It is unfortunate that the guidelines were dilute enough to allow the GET/CBT believers to continue in place with only minimal mental gymnastics.

Had a look on the Independent site but found nothing relevant under ‘Zoe Beauty’ for today. However I don’t have a subscription so I don’t know if that restricted my search.

Not to mention the problems with subject selection and the introduction of bias by informing participants in advance that that the preferred treatments worked, even to the extent of Prime ministerial endorsement of the treatments shared in a newsletter to some participants mid study.

Yes, this. We still don’t have a good ‘natural history’ of ME.

Thank you for all the hard work people are putting into this issue.

It is hardly surprising that the impact of biological sex here mirrors all the other previous studies, and also what is seen in related conditions such as ME/CFS, but I must admit, from the abstract at least, the gender related discussion left me confused. Were they expecting perceived gender...

Prior to the this current scandal, I had been drawn to the model seen in examples from historic accounts. The pattern seemed to be the publication of a relatively serious academic book followed by a more populist account followed by either TV or film drama and/or a novel. You saw this in ‘The...

Do we know why Norway is choosing to create guidelines for fatigue in general rather than for specific conditions? It rather feels that this is already well down the BPS psychogenic rabbit hole, where instead of developing condition specific solutions there is ever greater lumping together of...

To be fair the problems of psychosomatic medicine do not originate with trained research psychologists, but with other professionals, most of whom like Freud started from a medical training. The problems with such as the current BPS research were well understood within experimental psychology...

A very useful break down, but on top of that I have very variable symptoms which may (or may not) relate to different types of alcohol, for example the only time I had a rash over much of my torso followed a glass of red wine, but then I had a migraine a couple of hours after a bottle of wheat...

I would argue we have clear evidence for the presence of ‘delusional disorder’ under the authors’ definition. On the part of the authors, that is. What is worrying is that we are also seeing clear examples of social transmission through research literature and academia.

Interesting that alcohol sensitivity has been picked up by researchers/medics recently for ME and now Long Covid, rather than any systematic attempt to address the wider issues of food sensitivities in general. I agree the alcohol sensitivity is of interest, but given the variability we see in...

I agree that Hilda is in an invidious position, but the current update, though drafted and to her credit very much pushed through by Hilda, is now an official statement by Cochrane, unlike Hilda’s personal blog, and so should be responded to as representing Cochrane’s current position. Also it...

Was it October when we were told our questions about timescales would be answered in a couple of weeks? However despite two official updates (Nov and Dec) on the Cochrane site and much discussion on Hilda’s personal blog, we are no wiser than we were in mid 2021 when previous updates stopped.

Interesting that there is no mention of the year or so delay due to objections by undisclosed parties to any replacement of the current 2019 version of the CFS Exercise Review, despite it being already recognised at publication by Cochrane to be flawed failing to address the recognised concerns...

Sadly mine has already been use lighting the stove.