Search results

For me a big concern with such as the Canadian system is that someone chronically ill who is experiencing suffering, not solely because of their condition but also because of the social and benefits culture they inhabit, is eligible for assisted dying. In this situation it is not clear that...

Though on the issue of disappearance it may be that the disappearance of Cochrane itself is more of a possibility than the disappearance of any review that retains the belief of any of its authors.

It is important to remember that DecodeME subjects are self selected, and though I don’t have any functional logical circuits at this time of night, so am unable to come up with a plausible hypothesis, it could be that the reasons people with long standing ME participated are different from the...

Definitely deserves to be widely shared.

Presumably, to state the obvious, the BPS dislike self help groups because they make it harder to gaslight patients into believing that it is faulty cognitions that perpetuate ME, that ME is purely fatigue and not a wider condition involving varied aspects such as PEM, orthostatic intolerance...

I can’t remember any of the sources but I think both White and Wessely have said in newspaper articles that membership of patient groups/forums may make CFS [worse] and hinder any recovery. [edited to add missing word]

Understanding variability in ME is so important. This may just be because symptoms and PEM involve complex interactions of cumulative physical, cognitive and emotional exertion over an unknown time span, hypersensitivities, orthostatic intolerance, food intolerances or because variability is...

Have not looked at the paper yet, but for me it is vital that any measure of PEM distinguishes it from more ‘rapid fatiguability’. In many conditions patients get fatigued by activity more rapidly and more readily than they would have been pre-morbidly. This is also true in ME and I assume in...

In the UK there is a rhetoric that the increase in numbers economically inactive reflects personal choice, that it is a behavioural issue, however that we continue to see an excess mortality would seem to counter this and suggest attempts to change behaviour by whatever means is unlikely to be...

Having red hair is associated with sun burn so it is obvious we need to manage ‘red hairness’ in order to prevent sun burn. Perhaps if people with red hair dyed their hair black all would be resolved. Although association is necessary in demonstrating causation, when will these people recognise...

If I remember correctly there were similar issues around the claim that red wine prevented coronary heart disease as in the UK heart failure was the go to cause of death when there was no reason to undertake an autopsy whereas in France it was not. So the difference in deaths due to coronary...

I always find myself worrying at various stages that the target won’t be met for David’s crowd fundings then there is a last minute surge. Great that David is continuing for another lap. Thank you @dave30th for your stubbornness, we benefit greatly from it.

I had an air fryer for about a year but did not get on with it. It was one my goddaughter had been given by the manufacturer in the hope she would promote it in her food videos. My goddaughter used it succesfully everyday while she was living here, but I did not get my head fully around how it...

Some couriers have a ‘leave safe’ option, where you can specify where you want the parcel left, though this would only work with contentious [sorry should read ‘conscientious’] drivers. I know of a number of friends that get parcels left in sheds left unlocked, another has parcel space set...

In relation to BACME, who are more likely to be clinicians working with face to face patients, rather than the great and the good of research and service planning who have repeatedly failed ample opportunities to address the research issues, I suspect the idea that rehabilitation necessarily...

I suspect this belief that psychological experience can change reality, in this case generate physical/biological symptoms, is a design fault in the human psyche. Lots of people are prone to go along with ‘if you believe enough you can change the world’, it is something populist politicians and...

I don’t know if there is any recent research of the impact of paying participants of the results of an experiment. All I can remember is slightly tangential to the current issue. A study looking at ‘cognitive dissonance’ involved a deliberately pointless and boring psychological study and then...

Not sure how much credibility to give this research, but it would be possible to raise the old split between art and craft. A magician first and foremost must develop practical skills whereas for example with a painter skill is seen as secondary to creativity. For example Canaletto is seen less...

To be fair it may depend on what components of Long Covid an individual has, for example someone who experienced lung damage at the acute phase may benefit from traditional relevant rehabilitation, though I doubt there is a lot of research evidence yet, however anything not starting with a...

So to purportedly remove their perceived gap, they create a new gap which, for the children with a missed biomedical condition that fall through into the FND gap, might be even harder to escape.