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    Child and adolescent chronic fatigue syndrome/myalgic encephalomyelitis: where are we now?, 2019, Segal et al

    This is the Lask, Dillon paper which recommends not burdening patients with a diagnosis of ME. https://adc.bmj.com/content/archdischild/65/11/1198.full.pdf
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    Child and adolescent chronic fatigue syndrome/myalgic encephalomyelitis: where are we now?, 2019, Segal et al

    The history of GOSH and ME seems quite complex. Dillon's reporting of the epidemic there seemed very sensible, but he did later collaborate on a paper with Lask in about 1990 which gave pause for thought. I shall see if I can find it.
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    Action for M.E.'s big survey, 2019

    And, of course, if they have not self-prescribed a form of GET, they can always be dismissed as idle b...…. who just will not make any effort to make themselves better.
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    ME is not a functional disorder: ME Association 13,000+ petition sent to NICE

    I had forgotten how bad things were with NICE until I went back to read the original MEA letter. So they have made it clear, have they, that when they use the term "functional disorder" they mean "emotionally generated", rather than a disorder of function of unidentified origin. What can be...
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    Social Services Can Threaten Families of Children with Chronic Fatigue

    Whatever happened to the principle that the welfare of the child was the paramount consideration. Forty years ago it used to be in the Children's Act 1969, but will have been replaced by now.
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    ME is not a functional disorder: ME Association 13,000+ petition sent to NICE

    Recommendation 30–Advice for suspected functional neurological disorders As functional neurological symptoms usually fluctuate and evolve with time, the committee agreed thatit was important to address the nature of the condition with people with this condition in order to allay concern about...
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    Mirror: Woman, 28, goes from keen runner to year in dark room because of severe disorder

    I am sorry if I have led people astray. I have major doubts about this. My comment was mainly directed at the title "Shine a light", which I presumed would be recognised as a well known euphemism.
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    Clinical symptoms and markers of disease mechanisms in adolescent chronic fatigue following Epstein-Barr virus infection, 2019, Wyller et al

    Could they have been CFS patients if they did nothave a marked reduction in activity levels?
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    Mirror: Woman, 28, goes from keen runner to year in dark room because of severe disorder

    I just found this paper on the subject. It is not often that one finds such useful commentary. One presumes that the author is familiar with rhyming slang. Shine a Light Photobiomodulation and the brain – has the light dawned...
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    Mirror: Woman, 28, goes from keen runner to year in dark room because of severe disorder

    It is very odd. The interpretation to be drawn from the piece is that the patient in Wales has not been downstairs for almost two years, her partner has spoken to a doctor in England and he has recommended this treatment which entails crowdfunding. Should not a patient be actually seen, examined...
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    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Presumably that would have been the occasion on which someone was found to be in possession of a small knife, for use in aiding the consumption of her packed lunch.
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    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    I don't understand the failure to correct simple errors, which could easily be put right. KK is presumably going to be writing another piece about Cochrane. She may already be being briefed about it, for all we know. Why would they want outstanding complaints to remain on the record when that...
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    Rogue company Unum’s profiteering hand in the government’s work, health and disability green paper (2016) (ME mentioned)

    It seems strange that there hs never been any information as to how Peter Lilley and his department came to be in discussion with UnumProvident about this. It must have been as a result of lobbying and negotiations arising after the 1992 election. Perhaps the idea was to take Labour's election...
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    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Perhaps a literature review would indicate the nature of the papers to which such, perfectly proper, rigour is shown.
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    A general thread on the PACE trial!

    My recollection is that it made clear the parameters of the investigation and either implied or stated that other matters were outwith the remit of the enquiry. It is hard to know whether it would be more serious to fail to understand that, or to misrepresent it.
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    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    The only quote I can think of which comes close to that would be from the Eliot Slater lecture www.margaretwilliams.me/2003/prof-wessely-lecture-notes_12may1994.pdf On looking at that again it is perhaps surprising that he has not reprised a variation of that all that all time favourite from...
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    Davie Provan - ex-footballer with ME

    I wonder where we would have been today if people had gone along with Holmes et al's original description of a "chronic mononucleosis like syndrome", rather than choosing "chronic fatigue syndrome".
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    Living with an unsociable illness - blog April 2019

    I was reading about neurasthenia yesterday. Apparently the army had a post of "Inspector of temporary non-effectives". I thought that just about sums us up. Unless, of course, it's permanent.
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