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A planned national study, named COCOLATE, has not started yet because of funding woes, so a team is doing a study on what appears to be the immune response to vaccination. In Paris.

It turns out that this study was not funded, or may be delayed, or whatever. At least according to this. Because if you don't study a problem does it even exist? You can certainly say it doesn't, or it would have been studied.

Maybe already discussed but it seems there was a prior attempt to do this study in 2012. Or maybe this is the same attempt? https://www.dagensmedisin.no/artikler/2012/09/27/vil-bruke-ni-millioner-pa-omstridt-me-metode-/

Anyone know about this? https://thetyee.ca/News/2021/07/05/I-Should-Not-Have-To-Beg-For-My-Life/ Haven't heard of this. It's a good article otherwise, but the details are the same old we already know of: horrible and no one but us cares.

Simon Wessely summed it up this way, paraphrased: "the placebo is one of the most powerful interventions we have". They believe their effect is a placebo effect. They think the placebo effect is powerful and that our experience is a powerful nocebo. It's circular logic lacking any evidence but...

Odd comment coming from people who would leave those guidelines as is, in fact are trying their hardest behind the scenes to keep them as is. In fact they literally did, until they had to backtrack. And the updated draft actually blames them, though in the most passive way possible. But, again...

Straight up lying sure is one way to deal with criticism. You see those droids? They are not the droids you are looking for. And calling patients pointing out basic facts trolls. That's how you know Parker is now one of the gang. It's not as if any of this matters, people are allowed to lie...

Hey, isn't that a variation of "we have no evidence of complaints" when it is impossible to record complaints, justified by the lack of accepted complaints. Are they that dense? Or just that malicious? Surely they can't be so lacking in self-awareness to not understand that refusing to provide...

"I'm sorry I got caught" is the most pathetic there is but this doesn't explain the journal's inability to perform basic peer review and editing, why it was necessary to push them to do something that is expected to be part of their work to begin with. This is the "my dog ate my homework" of...

Uh. Maybe that's this paper's purpose. Ridiculous but not by their usual standards.

Or RecoveryNorway being Streisand effect?

When you put it this way... One dominant theme in the literature is how we reject it, they are endlessly frustrated that we are not gullible enough for it. So naturally, convincing physicians is far easier. When it comes to psychosomatics most are endlessly gullible, they accept every claim no...

What's amazing is that in going with denial, this guarantees the worst possible outcomes. Essentially medicine and governments are complicit in making every possible decision at every possible opportunity to make the problem the absolute possible worst while at the same time doing everything...

We literally know nothing, what is "known" is at best speculation. Quotes like this are so annoying when you see how common they are. What is even the point of pretending? Maybe just so as not to admit to total failure, given that it's the product of an obsessive ongoing effort going back...

I assume this is to distinguish from generic CBT, since we know the CBT for ME is completely different from, say, supportive CBT for cancer or phobias. Even though it's one of their biggest selling points, that even cancer patients see nothing wrong with CBT, showing how silly we are to refuse...

I'm not sure where that claim comes from, just that it was funded. The site looks like a crowdfunding platform so I'm frankly not sure what this means. Was hoping someone else knew more.

I mean the BPS overlords constantly tut-tut about the discrimination we are facing, oblivious to the fact that they are its cause, because to them that stigma is not "understanding" their thing, so they want more of it, which leads to more discrimination, which means their skills are more needed...

This appears to be plan B, Per Fink of course. If it's not the LP, it's basically the LP with a fake mustache. It explicitly refers to the rejected study to justify it. I will safely assume they will actually use the rejection in Norway to emphasize how it's actually more important than ever...

Copied post from Lightning Process study in Norway - June 2021 - not approved by Ethics Committee, with some moved posts following. A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al has some relevance...

There it is, after decades of re-runs of the jumping the shark episode, this is running an entire season of nothing but the jumping the shark scene. An actual discussion over "angels dancing on hairpins" that is completely serious and oblivious to its own absurdity. They are discussing this...