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  1. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Didn't they do a little clean-up recently precisely on the justification of removing reviews that are not current, there was one for Chinese herbs or something like this. What sense does it make to keep a review published that is explicitly marked as out-of-date? Makes no sense. It even says...
  2. rvallee

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    One remarkable detail in all of this is that there is absolutely no discussion of the substance of the "treatments", that they explicitly aim to influence and change how participants respond to questionnaires. The entire process of the intervention is to make people perceive themselves better...
  3. rvallee

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    But the question remains: was GRADE applied properly on the whitewash that is the "CFS" Cochrane reviews and similar work, giving high marks to unblinded studies with poor methodology and did not respect Cochrane's own rules and requirements, or was the correct application the one done by the...
  4. rvallee

    International: World Health Organization News (news relevant to ME/CFS, Long Covid and related conditions)

    There has indeed mostly been talking, with not much walking happening yet. So far nothing actually useful has yet to come out of this, pending however the NIH spend that fortune. The UK's NIHR effort is too tiny to even count, frankly. All shows how much "attention" is worth: a whole thesaurus'...
  5. rvallee

    International: World Health Organization News (news relevant to ME/CFS, Long Covid and related conditions)

    Weird how all the stuff that wasn't possible to do for us is perfectly possible and in fact being done quite naturally because it's the normal thing medicine does when it's decided that a problem is worth solving. Medicine did not solve ME as a choice. This could have been done decades ago...
  6. rvallee

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    I imagine there is supposed to be a point somewhere in there but all I read is people saying if they had been tasked with it they would have done it differently because they don't like the outcome it gave without being there to change it to their preference. No substantial argument other than...
  7. rvallee

    Functional neurological disorder and multiple sclerosis: a systematic review of misdiagnosis and clinical overlap, Walzl, Stone et al, 2021

    From people who admonish the use of medical labels, no less. Almost as if it's not a sincere argument.
  8. rvallee

    [CBT] with exposure and response prevention in the treatment of obsessive-compulsive disorder: A systematic review & meta-analysis.., Reid et al, 2021

    This is universal to EBM. In fact EBM is mostly that, people pushing whatever they prefer until it sticks the old pre-science way of just arguing for one's opinion. It requires more than investigation, it requires overhauling the entire system to remove this state of double standards where...
  9. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    She is still stuck on the "ME is fatigue and nothing else", sadly. Hard to compare to something with a fully distorted picture of it.
  10. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    If they avoid any mention when it counts, I don't see how they would not avoid working the issue entirely during the entire research program. This is what lack of courage looks like. No leadership to be found, as is tradition in medicine. The denial is clearly strongly motivated, it's not an...
  11. rvallee

    A clinical primer for the expected and potential post-COVID-19 syndromes, Walitt and Bartrum, 2021

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7889402/ Abstract In late 2019, a novel coronavirus SARS-CoV-2 (COVID-19) spread unchecked across the world's population. With tens of millions infected, the long-term consequences of COVID-19 infection will be a major health care focus for years...
  12. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Canada's 'long-haulers' without family doctor need primary care: medical association https://www.ctvnews.ca/health/coronavirus/canada-s-long-haulers-without-family-doctor-need-primary-care-medical-association-1.5318564 I'm not sure which way to take this but I don't think it's meant in a good...
  13. rvallee

    The influence of the biopsychosocial (BPS) view of ME/CFS in government guidelines and medical practice in different countries (past and present)

    In Canada we don't have a national health care service, rather we have national standards that provinces are responsible for implementing. So we don't have anything as structured as the NHS or NICE to push through something like BPS. It either happens organically or it doesn't, but abusing...
  14. rvallee

    Association between CFS and suicidality among survivors of Middle East respiratory syndrome over a 2-year follow-up period, 2021, Ahn

    Ah, found it. In a footnote. So it's fatigue alone using FSS: So: junk. Or not relevant to ME, CFS, ME/CFS or any variation thereof.
  15. rvallee

    Association between CFS and suicidality among survivors of Middle East respiratory syndrome over a 2-year follow-up period, 2021, Ahn

    Heh. I noticed this one, it could have been somewhat useful to know the proportion of "recovered" from MERS who fit CFS diagnostic criteria, or frankly any general health evaluation, but frankly this study is too much of a mess to tell anything. No idea why they focused on "suicidality" instead...
  16. rvallee

    The influence of the biopsychosocial (BPS) view of ME/CFS in government guidelines and medical practice in different countries (past and present)

    Probably has to do with the architecture of the health care systems, the US simply doesn't have this unified thing that can push through a single-minded idea like Wessely, Gerada and others with influence did through the NHS. US medicine is simply too large to have a small mutual admiration...
  17. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This questionnaire actually looks useful and competent, including for ME. Thread: And this one also: This kind of questionnaire was discussed a few times prior. Here as an example...
  18. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    From overviews it appears interesting but because, I guess reasons, it's copyrighted so it's hard to assess. Most health questionnaires are copyrighted. And cannot be accessed because of said copyright. Normal things. The incentive system in medicine is completely broken, essentially built for...
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