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I remember watching a video of a doctor demonstrating nasal irrigation with salt water. He warned against using tap water, as he said at least 2 people had died from infection carried by the water spreading into the brain. He strongly recommended buying ready prepared nasal wash in sterile...

I think they should pay travel costs and other costs involved in taking part, and if it involves significant time commitment and it's a well funded study it seems reasonable for people to have some payment for their time. Also if the person needs to be accompanied by a carer there should be...

Some posts have been moved to News from Cochrane Please try to keep posts relevant to the thread topic.

Some posts have been moved to UK: Cheshire, Merseyside, Knowsley ME/CFS services

The article gives a huge list of symptoms for MCAS, and a prevalence of 17%. I assume this means they are calling all common allergies and sensitivities 'MCAS'. I looked at the treatment section, which starts with drugs such as antihistamines and goes on to include some less commonly used drugs...

https://www.mdpi.com/2075-4426/13/11/1562 Abstract Mast cell activation syndrome (MCAS) is an immune disease with an estimated prevalence of 17%. Mast cell chemical mediators lead to heterogeneous multisystemic inflammatory and allergic manifestations. This syndrome is associated with various...

The editorial group is international.

I can see the point of cardiologists assessing people for POTS asking about symptoms, and doctors generally learning to recognise symptom patterns that may be caused by POTS, so symptom questionnaires may be useful. I'm not sure what this has to do with health psychology. The use of...

The authors are all from the Health Psychology department at Kings, except for one consultant cardiologist.

I looked at their website: https://johnsnowproject.org/about/ They are promoting use of vaccination, ventilation, air filtration, high quality masks etc.

That looks like very good news, provided of course, if they decide to replace it, that the replacement is better. Many thanks to Charles Shepherd.

Having read Jessica's first book, it's so heartwarming to hear that she is no longer in the dire state she was then. I hope her improved health continues.

Report from a hospital in Spain. Given that the patients had already been diagnosed elsewhere, why were they sent to the "Exercise Physiology Department at our hospital, a dedicated referral unit for CFS"? Presumably for treatment of some sort, GET perhaps. If so, I wonder whether they did the...

I read some of the guide. At first I thought it was pretty good on management of severe and very severe ME/CFS because it includes some of the stuff from the NICE guidelines about needing low sensory and accesible care, side rooms in hospitals, and some needing feeding help including tube...

I can't see any point to CBT for menopausal symptoms any more than for ME/CFS. Sure, if someone is finding her life difficult to cope with, some supportive counselling from someone who understands what she's experiencing, along with things like work adjustments may be helpful. But why CBT? Women...

Thanks for the quick response. I think maybe wait until they have further information rather than palguing them with more questions unless you particularly want answers. I was asking more out of curiosity than a need to know. It sounds like they are busy with getting the new study up and running...

Looks from the abstract like Great Ormond Street hospital, which is a specialist children's hospital in London, has written this article to pat themselves on the back for doing everything right, and tell everyone else how to do it. But it's paywalled, so we don't actually find out what they do...

Hi @josepdelafuente thank you for that very helpful report on how it works and how you're doing with it. I'm pleased to hear you got your PIP award and that has enabled you to reduce your workload and pace better and really feel the difference so quickly. From what you say it seems like heart...

I suspect they would just say they aren't interested in past problems with GET because NICE no longer recommends it.

My response to this questionniare is that if you weren't feeling miserable about your life with a long term condition at the start of the survey, you are likely to by the end with all those negative emotions being asked about, and the few positive ones being out of reach not because of feeling...