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Thanks Caroline.

Doesn't surprise me that he's still recommending GET. He says in his book from post NICE 2021 that it should still be available as it 'helps some people'. https://www.s4me.info/threads/living-with-me-and-chronic-fatigue-syndrome-penguin-book-coming-up-22-sept-2022-bps-views.29552/ He runs a...

Looks like it's an in person event, not online.

Trying to get my head around this from a quick skim and Hutan and chillier's helpful comments: Groups included were ME mild/moderate, ME severe, MS, healthy. The samples are from the UK ME/CFS biobank, so blood, not CSF, and MS as the disease control. From the background: From the...

The Danny Altmann talk is also discussed here: https://www.s4me.info/threads/long-covid-in-the-media-and-social-media-2023.31490/page-42#post-485033

The Danny Altmann talk is also discussed here: https://www.s4me.info/threads/news-from-aotearoa-new-zealand-and-the-pacific-islands.4230/page-43#post-484797

Grief can be something that disables some people for a long time (I mean years) and they may need help to get to the stage where they can get on with life. If the only way they can access such help from psychiatrists or psychologists or counsellors is for a diagnositic label to be attached to...

I agree and I'm sure a lot of that happens. I was particularly pleased that the IACFSME conference last year was held fully online, and the German conference run by Dr Scheibenbogen this year was a mix of online and in person because it meant some patients could watch in real time. This year's...

More on Pax Medica and Suramin here

Thread on a trial of Suramin for Long Covid, 2022. PaxMedica Plans to Initiate Phase 1B Study for PAX-101 in Patients with Long COVID-19 Syndrome

A systematic review of the strength of evidence for the most commonly recommended happiness strategies in mainstream media Folk and Dunn Abstract We conducted a systematic review of the evidence underlying some of the most widely recommended strategies for increasing happiness. By coding media...

It might be better to contact Katie via Twitter or some other means. She hasn't visited the forum since May.

I wonder whether that data comes from an ME/CFS study, or from asking people in gut bacterial studies whether they are fatigued.

From Google On that basis I come out as moderately/severely depressed on PHQ 9 and not at all depressed on PHQ2

It might be interesting to do a study using PHQ 9 with people with 4 groups: - ME/CFS - another chronic disabling physical illness, - depression and - healthy and analysing the results scored for PHQ 2 which is just the first 2 questions, and comparing with results for PHQ 9. I suspect they...

Thread on the thesis here: How does pain influence the outcome of CBT in patients with CFS/ME?, Kvam, 2021 (Master thesis)

Discussion has been moved to the combined thread. This thread is now closed.

The 2 research projects sound interesting. It looks like they will be based on people's subjective reporting of symptoms and function rather than their heart rate measurements. It's useful to have such a large participant group ready to be invited to partipate in studies like these. That's what...

I couldn't see any correlation either, and attributed it to my failing to measure my HRV on waking as it told you to do. My timings were anything from just after waking (occasionally), to on waking during the night, to several hours after waking if I forgot. I'm probably at my most groggy and...